Rare and Complex Conditions

Some parents might be surprised to learn that more and more children are being diagnosed with acute pancreatitis, which is an inflammation of the pancreas. It occurs in about 1 in 10,000 kids of all ages, including infants and toddlers. › Continue Reading

Tracking seizures can be incredibly helpful for parents and caregivers alike to help figure out when they happen, whether there are any potential triggers, and whether there are any patterns to the seizures. This type of information can be helpful › Continue Reading

What we know about medications and how they affect the kidneys has evolved over the last decade. More awareness is needed around this new knowledge because what we’ve learned about nephrotoxic medications is that they can lead to poor outcomes – › Continue Reading

Today – March 6 – is a special day for us. It is our son Ryan’s birthday (see Part 1 of our story here). We’re excited to share the final part of this story today because it turns out this › Continue Reading

When our son Ryan was born with a congenital heart defect (CHD), the world as our family knew it was turned upside down. If you didn’t read that part of our story yesterday, please go read it here and then › Continue Reading

Our son Ryan has always been a heart warrior – that’s part of the deal when you’re diagnosed with a congenital heart defect (CHD) as a baby. But he and our family didn’t truly become heart advocates until a fateful visit › Continue Reading

One of the most common threads we hear from parents is the challenge of understanding and describing your child’s congenital heart disease to friends and family. That’s why we developed nine congenital heart disease animations for families to view and share. But › Continue Reading

Whether your child has received a diagnosis quickly or has traveled a long journey to eventually get one, receiving an eventual diagnosis can bring about a mixture of emotions. On one hand it can be relieving to know what it › Continue Reading

Laryngomalacia. That’s a big word to explain a relatively common condition that occurs in infants. “Laryngo” means having to do with the larynx (the “voicebox”), which is located in the trachea where the vocal cords are. And “malacia” means a › Continue Reading

Ten years ago, it was starting to become clear that my 12-year-old son was not well. At first I’d assumed his string of occasional fevers and complaints of stomach pain were just everyday viruses. However, I soon realized he was › Continue Reading

Lego fanatic! So many kids are these days, but my son James epitomizes the title. My daughter loves them, too, but he eats, sleeps, and breathes Legos. So of course “Art of the Brick” at Cincinnati Museum Center was top › Continue Reading

The short answer is: it depends. If you have congenital heart disease and are thinking about becoming pregnant, or if you already are pregnant, you need to speak with a high-risk obstetrician (maternal fetal medicine (MFM) specialist) and a cardiologist › Continue Reading

Holidays can be challenging for kids (and adults!) with food allergies. Many holiday foods are not safe for those with food allergies – especially allergies to milk, egg, and wheat. However, many traditional foods can be made with allergy-friendly ingredients › Continue Reading

We had our first baby- a boy- on a Friday evening in Spring of 2010. We were thrilled with how perfect he was, admiring every finger and toe, and gladly took him home after the required two-day stay in the › Continue Reading

Our dietitians put together holiday recipes that exclude six of the most common food allergens.  (Recipe courtesy of Raquel Durban). Ingredients 2 cups gluten free flour 3 frozen bananas 1 cup frozen berries 3/4 cup sugar 1/2 cup applesauce 2 › Continue Reading

Our dietitians put together holiday recipes that exclude the six most common food allergens. Recipe courtesy of Bethany Doerfler. Ingredients(serves 4) 1 can white kidney (cannelloni) beans 2-3 Tbsp olive oil 3-4 plum tomatoes (diced) ½ cup black or Kalamata › Continue Reading

Our dietitians pulled together holiday recipes that exclude six of the most common food allergens. This is a great one for when you don’t feel like cooking. Recipe courtesy of Bethany Doerfler. Ingredients (serves 4) 6-8 cups Gluten Free chicken broth › Continue Reading

Our dietitians put together holiday recipes that exclude the six most common food allergens. Enjoy! Ingredients Pie Dough 5 cups of gluten free flour + extra for rolling the dough 1/2 teaspoon of salt 1/2 teaspoon of xantham gum (but › Continue Reading

Our dietitians put together holiday recipes that exclude the six most common food allergens. This recipe also works with Brussels sprouts. Enjoy!  Ingredients 16 oz bag of carrots 2 tablespoons honey 2 tablespoons coconut oil 1 tablespoon lemon juice Salt › Continue Reading

Our dietitians put together holiday recipes that exclude the six most common food allergens. Enjoy! Ingredients 8 lbs baking potatoes, peeled and cubed 1/2 cup Unflavored elemental formula or any milk substitute 1 cup unsalted chicken stock (or homemade) 2 tablespoons › Continue Reading

Our dietitians put together holiday recipes that exclude the six most common food allergens. This one is courtesy of Bethany Doerfler.  Ingredients (Serves 4) 1 lb fresh ground beef, chicken or pork ¼ cup Heinz Ketchup 2-3 Tbsp olive oil Potato › Continue Reading

Our dietitians put together holiday recipes that exclude the six most common food allergens. This recipe works with turkey or duck as well.  Score the skin of the chicken breast with a sharp knife and season with salt (remove the skin › Continue Reading

Ever since I can remember, sickle cell disease has been a part of my life. Some days it was only a small part of my life and other days, like when I had a pain crisis, it was all consuming. › Continue Reading

Preparing Thanksgiving dinner can be stressful under the best of circumstances, so when you have a guest, perhaps your child or family member, following a restricted diet due to multiple food allergies, menu planning can be more of a challenge. › Continue Reading

Previously, we discussed how to eliminate cow’s milk from your child’s diet and how to identify milk ingredients in foods. Now that you’ve removed the milk, we need to talk about how to replace those foods in your child’s diet. › Continue Reading