Rare and Complex Conditions

When I first met Dr. Garcia at age 13, I was known as “torpedo chest” at the community pool because of the large dent in the center of my torso, and still a long way away from considering my now › Continue Reading

If you knew a family member or friend had a potentially dangerous or catastrophic health issue but wasn’t seeing a doctor for it, would you recommend that they see one? I think the vast majority of us would. In my › Continue Reading

There’s a very real health issue happening right now – well, it’s been going on for the last 3-4 decades – and we haven’t been able to break through the “noise” to spread awareness for it. I need your help. › Continue Reading

At the beginning of 2016, I was miserable. My family was on vacation in Colorado so that we could ski, something we’ve been doing since I was little. The second day we were skiing I fell and landed on my › Continue Reading
Summer is an exciting time for kids and families alike, as the days are filled with camps, sleep-overs and vacations. During this time, parents of children with food allergies have the extra challenge of figuring out how to navigate their child’s › Continue Reading

When your child receives a diagnosis of IBD, or inflammatory bowel disease, it can be earth shattering in many ways. It’s a frustrating condition to manage and can impact your child’s and family’s quality of life. While medications to treat IBD › Continue Reading

In short, hematuria in kids – or blood in the urine – often means that something else is going on in their bodies. It tells us that we need to do further exploration. Rarely is hematuria in children caused by cancer, › Continue Reading

If you have had a child born with a heart defect, you may be concerned that future pregnancies will result in a similar outcome. Congenital heart defects (CHD) are common and impact more than 40,000 babies each year. The chance of › Continue Reading

Anna Joy is the youngest of four incredible little girls. My pregnancy with her was going smoothly — I was super sick with “all day sickness” just like I was with her older sisters. Nothing seemed amiss. At the routine 20-week › Continue Reading

I’ve been asked several times why the butterfly is such a meaningful symbol, not just for me and my fiancé Ty, but for the entire transplant population. And put quite simply, it’s important because a butterfly symbolizes hope. Before it › Continue Reading

Starting infants on solid foods not only provides nutrition, but also gives them a valuable opportunity to learn about different tastes, odors, and textures — which is an important milestone for all babies, regardless of whether or not there is a › Continue Reading

I was born in Dayton, Ohio in 1971 with transposition of the great arteries (TGA). This means my pulmonary artery and aorta were in reverse position, preventing oxygen rich blood from pumping into the body. TGA babies had a blue tint › Continue Reading

Today we were reminded of how a group of thoughtful people can make a big impact in the lives of others. In this case, it was a group of middle school students from Seven Hills bringing a huge smile to two-year-old › Continue Reading

When your child is diagnosed with celiac disease, deciding what to eat can feel overwhelming! That's why we've put together a list of safe and unsafe ingredients for kids and parents to reference. The good news is that there are many gluten-free grains › Continue Reading
Because I was born with double outlet right ventricle, a type of congenital heart defect, along with additional heart conditions, I never thought that it would be possible for me to carry a child. In fact, for most of my › Continue Reading

This quote is appropriately displayed on our participants’ bib holders, which they will be able to frame after they finish the progressive Flying Pig Marathon: “The miracle isn’t that I finished. The miracle is that I had the courage to › Continue Reading

While inflammatory bowel disease (IBD) can be a very frustrating condition for many children – and some may wonder if the symptoms will ever end – there is much to be hopeful about. About 80% of our patients are truly › Continue Reading
Henry arrived after an easy pregnancy and smooth delivery. Soon after his birth one of his nurses casually mentioned that she heard a heart murmur. I convinced myself it was just a benign murmur, something that would fix itself or › Continue Reading

Bartter syndrome entered my life swiftly through my son, Ian Wesolowski. Less than eight months ago he was fighting to stay alive. His potassium, sodium and chloride levels were all extremely low and no one could explain why. Ian was › Continue Reading

I see many children and adolescents participate in our Bowel Management Program who have challenges that would stress out even the most patient adult. Some of these kids struggle with constipation. Others have bowel accidents that are totally unpredictable. What › Continue Reading

When your child receives a cancer or blood disease diagnosis, it can be a stressful period of time. A lot of information has been given to you and sorting through it all can be overwhelming. The good news is that › Continue Reading

Some parents might be surprised to learn that more and more children are being diagnosed with acute pancreatitis, which is an inflammation of the pancreas. It occurs in about 1 in 10,000 kids of all ages, including infants and toddlers. › Continue Reading

Tracking seizures can be incredibly helpful for parents and caregivers alike to help figure out when they happen, whether there are any potential triggers, and whether there are any patterns to the seizures. This type of information can be helpful › Continue Reading

What we know about medications and how they affect the kidneys has evolved over the last decade. More awareness is needed around this new knowledge because what we’ve learned about nephrotoxic medications is that they can lead to poor outcomes – › Continue Reading

Today – March 6 – is a special day for us. It is our son Ryan’s birthday (see Part 1 of our story here). We’re excited to share the final part of this story today because it turns out this › Continue Reading