Rare and Complex Conditions

“I’m active.  I feel better.  I’m happy to be alive.”  These are words from Misty Barnhart, a patient of the Tuberous Sclerosis Clinic at Cincinnati Children’s. Before coming to Cincinnati Children’s, Misty had one of her kidneys removed after a procedure › Continue Reading

This month we are sharing reader-submitted stories that reveal the true spirit of the holiday season. This is Hannah’s story as told by her mom, Libby. Every day when I look into the eyes of my happy, healthy six-year-old daughter Hannah, I › Continue Reading

My name is Ashleigh Baker and I have been a Cincinnati Children’s patient my whole life. I was born with a unilateral cleft lip and palate and I have been patiently waiting my tenth surgery which is finally tomorrow! As › Continue Reading

Last we met the Vaughn family, they told a story of a fragile Christmas baby who was fighting for his life. When Lisa and Anthony Vaughn’s son was born on Christmas Day, 2008, they named him Immanuel. He weighed 1 › Continue Reading

Seven-year-old Lydia Butler’s medical journey began when she was five days old and her parents found out she had a heart murmur. Tests showed she had tricuspid atresia, a defect that blocked the blood flow from her heart to her › Continue Reading

When Cincinnati Children’s first told Erin Grasty’s patient story two years ago, she was a 16-year-old patient with epilepsy. She had been having seizures since she was 10. Erin and her mom, Patty, talked about what it was like to › Continue Reading

This morning, Jason Williams of Peebles, OH, joined his doctors in a room full of news media representatives as they described the first-of-its-kind surgery that Jason agreed to at the beginning of September. He says it was as much for other Duchenne muscular dystrophy › Continue Reading

Doctors at Cincinnati Children’s Hospital Medical Center held a press conference today to discuss the first surgery in the nation involving the implantation of a heart device in a patient living with Duchenne muscular dystrophy (DMD). DMD is a genetic › Continue Reading

in the middle

Tonight when I went to kiss my Asher at bedtime, he stopped me and said, No. Your nose. I want to kiss your nose. So I moved my nose closer and his little five year old lips found their way › Continue Reading

“Who are you walking for this year?” It’s a question you’ll hear asked frequently as we countdown to the 7th annual Cincinnati Walks for Kids on Saturday, Oct. 20 at Coney Island. As the walk coordinator, I get to hear › Continue Reading

Taking a beautiful new baby home from the hospital is a cherished experience, but for approximately 20 families in the Cincinnati area each year, a simple phone call significantly changes those first few days at home. The call comes from › Continue Reading

LeCarol Batson has a coping skill to share with other kids who have sickle cell disease: Sing it out. Since she was 6 years old and started attending summer camp for kids with cancer and blood disorders, LeCarol has looked for › Continue Reading

When he sits in the waiting area at Cincinnati Children’s, Joey Evans is usually the oldest patient in the room. At 40, Evans, a childhood cancer survivor, doesn’t mind looking like he’s old enough to be someone’s father. He already › Continue Reading

Maria Seta Kirkland says she has a soft spot for bald heads and chubby cheeks. She is a childhood cancer survivor and once had a bald head and chubby cheeks herself. She always wants to tell people she loves them. › Continue Reading

Fourteen-year-old Shane DiGiovanna has wanted to be part of the exploration of space since he was a toddler. Today, he came one step closer when he met two men who have explored space and had the opportunity to ask them › Continue Reading

Hyundai Hope On Wheels® and Cincinnati-area Hyundai dealers awarded Cincinnati Children’s Hospital Medical Center a $75,000 Hyundai Scholar Grant to support the pediatric cancer research of Dr. Maureen O’Brien, who is currently working to identify new therapies that may help › Continue Reading

In August 2011, I was anxious, nervous, thrilled, worried and relieved all at the same time while walking into Cincinnati Children’s Heart Institute. Since the fall of 2008, I felt a strong need to know what my three children’s hearts › Continue Reading

Did you know treatment for early onset scoliosis can begin when patients are babies? Experts at Cincinnati Children’s often correct curves in a child’s spine with a series of casts. June is National Scoliosis Awareness Month, and we invite you › Continue Reading

As a national leader in treating kids with eosinophilic disorders and severe food allergies, Cincinnati Children’s often becomes a home away from home for families seeking our highly specialized care. Now our guests with allergies can count on finding something › Continue Reading

Ashtyn Carrier was 7 when she was diagnosed with a rare and almost unpronounceable immune-system disorder called Hemophagocytic Lymphohistiocytosis, better known as HLH. She and her family moved all the way from Minnesota so she could receive treatment at Cincinnati › Continue Reading

We know one young Reds fan who is excited that Joey Votto is staying put in Cincinnati for a while! Watch Brody’s story here and Happy Opening Day everyone! Go Reds!

The following article was written by Jeannette Moninger and published by iVillage. Recently, 12 teenage girls who attend the same upstate New York high school suddenly began experiencing uncontrollable movements and sounds called “tics,” which are common symptoms of Tourette Syndrome. Although › Continue Reading

Of the 600,000 American adults with congenital heart disease, fewer than 50,000 are believed to be treated by cardiologists trained to care for them. That’s largely because advances in pediatric heart surgery and cardiac care have increased the lifespan of › Continue Reading

Fifty years ago, most children with cystic fibrosis died before they were 10.  Many did not live long enough to see the inside of a classroom.  But according to the most recent numbers available from the Cystic Fibrosis Foundation, the › Continue Reading