Share Your Story

It took about 24 hours for the previous day’s events to truly sink into my seven-year-old son’s mind. I think the excitement – the pinch-yourself-is-this-really-happening kind of awe – was too much for him to believe in the moment. But › Continue Reading

When my daughter Sedona turned two years old she was little Miss Independent. She could button buttons and zip zippers. She knew how to get herself a snack. And she was even potty trained already. The thing that she could › Continue Reading

Music means different things to different people. That’s the beauty of it. As a professional guitarist, it’s always been a part of my life. More recently, it helped me through some difficult moments. It also brings people together. I’m always › Continue Reading

My daughter Riley is a gymnast. She started when she was eight years old, and we knew almost immediately that this was her sport. That’s why we decided after less than a year of classes, she could join the trampoline › Continue Reading

It didn’t occur to me how relevant the song, “Heal the World” was to my family until someone mentioned it to me a few weeks ago. Three of my daughters participated in Cincinnati Children’s “Heal the World” holiday video and something › Continue Reading

It never occurred to me that I wouldn’t be able to hold my daughter right after her birth. She was born nearly three months too early – and it was a whirlwind, emergent situation bringing a premature baby into the world. › Continue Reading

When I first met Dr. Garcia at age 13, I was known as “torpedo chest” at the community pool because of the large dent in the center of my torso, and still a long way away from considering my now › Continue Reading

I’ll never forget how my daughter came to realize the grave importance of sharing her transplant story. Angely was 11 years old at the time and in need of a life-saving kidney transplant. We were waiting our turn at the › Continue Reading

I’ve been asked several times why the butterfly is such a meaningful symbol, not just for me and my fiancé Ty, but for the entire transplant population. And put quite simply, it’s important because a butterfly symbolizes hope. Before it › Continue Reading

I was born in Dayton, Ohio in 1971 with transposition of the great arteries (TGA). This means my pulmonary artery and aorta were in reverse position, preventing oxygen rich blood from pumping into the body. TGA babies had a blue tint › Continue Reading

Bartter syndrome entered my life swiftly through my son, Ian Wesolowski. Less than eight months ago he was fighting to stay alive. His potassium, sodium and chloride levels were all extremely low and no one could explain why. Ian was › Continue Reading

Today – March 6 – is a special day for us. It is our son Ryan’s birthday (see Part 1 of our story here). We’re excited to share the final part of this story today because it turns out this › Continue Reading

When our son Ryan was born with a congenital heart defect (CHD), the world as our family knew it was turned upside down. If you didn’t read that part of our story yesterday, please go read it here and then › Continue Reading

Our son Ryan has always been a heart warrior – that’s part of the deal when you’re diagnosed with a congenital heart defect (CHD) as a baby. But he and our family didn’t truly become heart advocates until a fateful visit › Continue Reading

Lego fanatic! So many kids are these days, but my son James epitomizes the title. My daughter loves them, too, but he eats, sleeps, and breathes Legos. So of course “Art of the Brick” at Cincinnati Museum Center was top › Continue Reading

We had our first baby- a boy- on a Friday evening in Spring of 2010. We were thrilled with how perfect he was, admiring every finger and toe, and gladly took him home after the required two-day stay in the › Continue Reading

Sarah Caito is the type of mom who’d give anything to anyone to try and make a bad situation “all better.” It’s how she was raised, and it’s how she’s raising her children. In March, when Sarah’s daughter Anna was › Continue Reading

One day, no different really from any other work day, I happened to be riding one of the employee shuttles at Cincinnati Children’s with a great guy who was a year behind me in residency. I knew he and his › Continue Reading

Go to Disney World or not. Noah Kennedy had a decision to make. Take a week off to vacation with his family at the happiest place on earth, or stay back and keep the commitments he’d made at home. It › Continue Reading

Little did I know when I first shared my cystic fibrosis story in March 2015 that everything would begin to come full circle less than one month later. At that time, I’d been a patient at Cincinnati Children’s for 20 › Continue Reading

In Memory of Liam

The story of our son Liam’s life is the story no parent wants to tell, but we do and we tell it for a reason. We can never have Liam back, but his memory is helping us make something good › Continue Reading

This summer Asia went through driver’s ed class. One day the students watched a video on organ donation. I had spoken with the instructor earlier in the week about Asia’s heart transplant because she had been at a doctor’s appointment. › Continue Reading

Our journey with Alexander began when my wife, Erin, was 28 weeks into pregnancy. After three consecutive mornings of prenatal imaging, we learned that our son’s heart was in a problem zone. The first appointment was a routine ultrasound at › Continue Reading

Country music is like medicine to my 9-year-old son. Sometimes when he’s having a bad day or if he’s been bullied, he’ll come home and listen to the music on his tablet all afternoon just to feel better. Connor was › Continue Reading

My son, James Dickson, was born with tetralogy of Fallot, a congenital heart condition comprised of four heart defects which cause oxygen-poor blood to flow from the heart to the rest of the body. He was only eight months old when › Continue Reading