Rare and Complex Conditions
Rett Syndrome: A Mother’s Perspective and Advice
A mother shares what she has learned through her daughter's experience with Rett syndrome. Read her advice to other families.
A Mother’s Wish for Kids Who Have Rare Disease
Kids with rare disease deserve respect and a supportive community. Read the wishes one mother has for all kids with a rare disease.
Handy Checklist: Going to College with IBD
Choosing a college can be particularly stressful for those with inflammatory bowel disease. To help, our IBD team compiled a going-to-college checklist.
When Idiopathic Scoliosis Threw Me For A Curve, I Swung Back
Following an idiopathic scoliosis diagnosis when she was 16 and subsequent surgeries, Jessie is back to living an active lifestyle, including barrel racing.
Why I’m Hopeful: Promising Research For Kids with Intestinal Disorders
A mother is excited about new research that could potentially help her daughter, who has cystic fibrosis and short bowel syndrome (intestinal disorders).
Perspective on Alternative IBD Diets
More patient families have been asking about the role of alternative IBD diets. A gastroenterologist explains what they are and their effectiveness.
Down Syndrome and Tracheal Rings: Lessons My Daughter Has Taught Me
My daughter, who has Down syndrome, complete tracheal rings and a laryngeal cleft, has taught me many lessons in her short life.
A Message from Dr. Kumar – Learn about HLH, Become a Donor
Dr. Kumar reflects on his participation for the third year in a row in 700 Miles to Hope, a bike ride to raise awareness about HLH.
Understanding Different Seizure Symptoms
Not all seizures have the same set of symptoms. Learn more about different types of seizure symptoms and warning signs.
From Liver Transplant to ‘Little Ball of Energy’
Allison has defied all of the odds following a biliary atresia diagnosis and a liver transplant. She has earned the nickname "little ball of energy".
Pectus Excavatum: The Student Becomes the Teacher
A medical student with pectus excavatum shares his experience as Dr. Garcia's patient and how he influenced his decision to become a doctor.
Ehlers-Danlos Syndrome: What I’ve Learned
Emma has Ehlers-Danlos and it has taught her how to break through obstacles and manage her chronic pain to live to a normal life. Read more of her story.
IBD: Tips for Managing Steroid Side Effects
When your child has IBD, steroids are often used as a first line of defense. Here are a few tips for managing steroid side effects.
Hematuria in Kids: What Does it Mean?
Learn more about what causes blood in the urine (hematuria) and when your child should see a doctor.
Samantha’s Adventures With New Lungs
Since Sam's life-saving double lung transplant for cystic fibrosis, she's enjoyed life with new lungs and kept the memory of her donor close to her heart.
Boy with Cerebral Palsy Receives Modified “Ferrari”
A group of Seven Hills Middle School students modified a toy "ferrari" for a boy with cerebral palsy, so that he could play with his older brothers.
A Promising Early Research Study for IBD Treatment
Dr. Denson is hopeful that an early IBD research study, which is looking at ways to influence the microbiome, has the potential to be an IBD treatment.
Running to Raise Awareness for Bartter Syndrome
Ian's support system -- his friends, family and even his doctor -- ran with him in a stroller during a marathon to raise awareness for Bartter syndrome.
Sacral Nerve Stimulation in Kids: New Therapy Shows Promise
Dr. Jason Frischer talks about offering sacral nerve stimulation (SNS) to kids as a treatment for fecal incontinence.