Adults with Congenital Heart Disease: Do You Struggle with Executive Functioning?
If you're an adult with congenital heart disease, you are at-risk for having executive functioning issues. Answer these questions to assess your risk.
Awareness Needed: Anomalous Aortic Origin of a Coronary Artery
Anomalous aortic origin of a coronary artery is the second leading cause of sudden cardiac arrest in teens. Learn why more awareness is needed.
Having Adult Congenital Heart Disease Hasn’t Slowed Me Down
Despite being born with a heart defect, this mom of three lives a fulfilling, active life. Read why she sees an adult congenital heart disease cardiologist.
Our No-Longer-Conjoined Twins’ 2nd Birthday: A Victory Celebration
No-longer-conjoined twins Selah and Shylah celebrate their second birthday. Their mom, Misty, reflects upon how far they've come.
A Tale of Two Heart Transplants
One Family. Two diagnoses of restrictive cardiomyopathy. Two kids needing heart transplants within three years of each other.
What You Need To Know About Cardiomyopathy Right Now
Cardiomyopathy affects nearly 30,000 children in the US. This infographic teaches symptoms to watch for to help with early detection.
Living with Congenital Heart Disease: Are You Lost to Care?
Four questions to help you decide if you or a loved one are lost to care, many years after having heart problems or surgery as a young child.
Future Pregnancy After CHD Diagnosis: 3 Things To Know
If your baby was born with congenital heart disease (CHD), you might be wondering what to do for future pregnancies. Here's what you need to know.
45 Year Old Runs Marathon with Transposition of the Great Arteries
Kevin Cobb, born with transposition of the great arteries 45 years ago, ran a marathon two years following a heart transplant.
Getting the Green Light: Pregnancy with Adult Congenital Heart Disease
One mother explains the process of getting the "green light" for pregnancy with adult congenital heart disease.
Fit Hearts Program Trains Cardiac Patients for Progressive Marathon
Our Fit Hearts program teaches cardiac patients how to be physically active on their own by training for a progressive marathon.
Henry’s Future with Tetralogy of Fallot
Following her son's surgery for tetralogy of Fallot, Laura reflects on how quickly they went from living in the moment to looking toward the future.
Heart to Heart: Ryan Goes to Washington, DC – Part 3
Heart advocate Ryan Moore works to spread awareness for congenital heart defects, like the kind he was diagnosed with at birth, in hopes of finding a cure.
Heart to Heart: Ryan Meets Kirk Urso – Part 2
When Ryan met Columbus Crew player Kirk Urso, he had a new friend and role model. Little did they know they were both living with congenital heart disease.
Heart to Heart: Ryan and Kirk’s CHD Story – Part 1
Ryan continues to tell his inspiring congenital heart disease story in books, on Capitol Hill and to other CHD families in hopes of someday finding a cure.
New Animations: Surgical Repair of Congenital Heart Disease
To help families better understand and describe the surgical repair for their child's congenital heart disease, we developed these animated videos.
Building Blocks of Recovery
Sometimes normal kid things can be the best recovery tools!
Sudden Cardiac Arrest and Your Teen Athlete
While sudden cardiac arrest in the young is rare, it often quickly leads to death. Here's what you need to know in case it does happen.
Adjusting to Life After A Heart Transplant
Why so many follow up tests, clinic visits, and proximity limitations are necessary for preventing rejection and complications after heart transplant.