Boys’ Rare Disorder Prompts Mother’s Crusade - Cincinnati Children's Blog

Boys’ Rare Disorder Prompts Mother’s Crusade

When Cincinnati Children’s diagnosed Becky Kremer’s sons with ATRX, a rare genetic disorder, she became passionate about not only helping her own family deal with the medical and developmental effects of the disease but also advocating for other children with disabilities.

After successfully raising $55,000 for her own sons, Kremer wants to raise money this year for another child with disabilities. “Now my passion is to help other families like us, so they do not go through a bumpy path,” Kremer said.

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The members of the news team at Cincinnati Children's are responsible for telling the stories of the medical center. Stories of the families we serve, research and clinical care, safe and healthy practices and happenings at the hospital. If it has to do with Cincinnati Children's, Danielle, Nick, Jim, Kate, Rachel, Terry and Shannon will keep you informed.

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