Father Bikes 700 Miles in 7 days to Raise Awareness for HLH - Cincinnati Children's Blog

Father Bikes 700 Miles in 7 days to Raise Awareness for HLH

A father who lost both of his sons to a rare immune disease is leading a team of cyclists on a 700-mile journey to raise awareness for hemophagocytic lymphohistiocytosis, or HLH.

The 7-day ride will take Justin Akin and the other riders from Natchez, Miss., to the front door of Cincinnati Children’s, home of the HLH Center of Excellence.

HLH is a life-threatening immune system disorder that hides behind a maze of contradictory symptoms. It is difficult to detect early and effectively treat.

Akin lost both of his sons, Andrew, age 2, and Matthew, age 5, to HLH. He and his wife established The Matthew and Andrew Akin Foundation.

“The mission of our organization is to support the HLH Center of Excellence at Cincinnati Children’s and their four core priorities of Research, Education, Clinical Care and Family Support,” said Akin.

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Comments

  1. Divya June 19, 23:40
    I have recently lost my only baby girl Divina..6 year old to the demon of hlh. I wish I could do something for the cause. Please guide me and my husband for the same
    • Rachel Camper
      Rachel Camper June 21, 11:06
      Hi Divya, I am so sorry to hear about your daughter. If you'd like to get involved with giving to our HLH Center of Excellence, please contact Kasey Beckham by phone 513-636-4221 or email kasey.beckham@cchmc.org. More information can be found here: https://www.cincinnatichildrens.org/service/h/hlh/give