Cincinnati Children's Blog

Lauren Hill’s DIPG Story Sparks Others to Speak About Need for Awareness

Lauren Hill’s battle with Diffuse Intrinsic Pontine Glioma (DIPG) at Cincinnati Children’s has garnered national awareness of the disease. Other affected families such as Grace White’s are reinforcing how important support and awareness are for those diagnosed with this rare disease.

Grace, 6, was recently diagnosed with DIPG, and although she and her family are from North Carolina, they have traveled to Cincinnati to obtain DIPG treatment at Cincinnati Children’s. “We know Children’s is well-respected and they’ve got a really good program for this,” her father, Scott White, said.

Regarding the need to address DIPG as soon as it’s diagnosed, Dr. Maryam Fouladi, the brain tumor program director at Cincinnati Children’s said, “It does progress pretty quickly. Radiation is an effective method and does help shrink the tumor and actually prolongs survival by several months. But it is not a cure.”

Cincinnati’s FOX 19 has more on the Whites and Lauren Hill’s campaign against DIPG. WCPO and the Cincinnati Enquirer have more on the story as well.

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