Mother Calls for Community Help to Fund a Cure for Rare Condition - Cincinnati Children's Blog

Mother Calls for Community Help to Fund a Cure for Rare Condition

Seventeen-month-old Christian James was born with congenital melanocytic nevi, a condition which covers part of James’ lower body with cysts and dark pigmentation. While he’s receiving chemotherapy at Cincinnati Children’s, his mother, Tanya Kennedy, is raising awareness and calling for support to help find a cure for the disease.

Only about one in 5,000 babies are born with the condition. “Obviously it’s very, very rare. But just because the number is low doesn’t make it any less important, and I just thought, ‘I am going to do something,’” Kennedy said.

James has undergone several rounds of chemotherapy, and his family plans for him to continue treatment at Cincinnati Children’s.

Watch the full story and read more at WKRC local 12’s website.

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