Cincinnati Children's Blog

Teen Creates Awareness of Bone-destroying Disease

When Joey Holt was 10, he suffered from chronic leg pains affecting his ability to walk. Doctors at Cincinnati Children’s Hospital Medical Center diagnosed Holt with Langerhans cell histiocytosis (LCH), a bone-eating disease that eventually caused Holt to have his hip replaced.  This disease is so rare that many have never heard of it, and funding for medical research primarily comes from families who have the disease.

It has become Holt’s mission to spread awareness about histiocytosis, and with the help of  Fort Thomas Mayor Mary Brown, Friday, Feb. 28, has been declared Histiocytosis Day in the city. Holt is also encouraging people to donate through www.histio.org or to Cincinnati Children’s Hospital Medical Center.

Read more at The Cincinnati Enquirer.

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