Category: Rare and Complex Conditions

Kids with chronic gastrointestinal disorders have additional stressors on top of the ordinary pressures of childhood. A child psychologist explains some techniques to cope so that they can return to school and their favorite activities.

AEDs were made so that anyone can give a life-saving shock to someone who is in sudden cardiac arrest (SCA). Read how easy it is.

Sickle cell disease is the most common genetic blood disorder in the United States. It is also often misunderstood. Learn four things about sickle cell and the people it affects.

The gut and brain are so intricately linked that if communication is off, it can cause minor to life-altering symptoms for kids. Read more.

Cow’s milk provides nutrients that kids need to grow, but not all of them can drink it. Read considerations for choosing an alternative milk.

It's important for parents to know the symptoms and risk factors of blood clots in kids so that they can be caught and treated early.

Kids with cerebral palsy & other motor disabilities may have limited use of their hands. Learn how to adapt toys so that they can still play.

Genetic testing found Ian's rare type of Emery-Dreifuss Muscular Dystrophy. Read how the diagnosis provided a sense of relief & path forward.

Food allergy and intolerance are often used interchangeably, but are actually quite different. Learn the difference and how to handle them.

Parents of children with celiac disease may find dining out to be a stressful experience. Read one of our dietitian's tips for making it work.

Child life isn't just for kids - they support patients and families at all ages and stages. Learn how they help adults with CHD.

Celiac disease is a tricky condition. It is often missed or mistaken for other conditions. Learn more by reading these facts about it.

If a child has one seizure, parents often ask if it means they now have epilepsy. Read answers to this and other FAQs from an epileptologist.

Von Willebrand disease is the most common inherited bleeding disorder. Learn misconceptions about it to help increase awareness & diagnosis.

Rule out more serious causes of your child's recurrent croup. Find out when you should see an ear, nose and throat doctor.

A mom explains how quick response, CPR, and an AED saved her son during sudden cardiac arrest, and why she's involved with Project ADAM.

Second opinions can help if you're looking for additional insights about a diagnosis, information about another treatment option, or peace of mind as you move forward. Learn more about second opinions and how to get one.

About 3.5% of kids have high blood pressure. If your child receives this diagnosis, a pediatric cardiologist explains what to expect next.

Laryngomalacia is the most common cause of noisy breathing in infants (stridor). Learn about other symptoms and when to see a specialist.

Very early onset IBD is diagnosed in kids less than 5 years old. As incidence is on the rise, a mom shares some tips to help other families.

When you have a guest with food allergies, preparing Thanksgiving dinner can be a challenge. Find tips and recipes from one of our dietitians for hosting a food-allergy-friendly Thanksgiving meal.

Traveling with conditions like Crohn's disease and ulcerative colitis is possible with some up-front planning. Our handy checklist can help you prepare.

Palliative care can play a valuable role for all kids with serious diagnoses, but is often misunderstood. Read 3 misconceptions about it.

Kids with epilepsy are more likely to have psychological challenges, like emotion, behavior, learning or development issues. Read why and what can be done.