Health Issue: Born with Heart Defect and Lost to Care
About 550,000 teens and adults are "lost to care": Born with a heart condition and are not being cared for by a doctor trained to treat and manage them.
Born With a Heart Defect: Q&A About The COVID-19 Vaccine
At last the coronavirus COVID-19 vaccine is here. In Ohio, Phase 1b includes vaccinations for those with preexisting medical conditions. What does that mean for people who have adult congenital
How Will Congenital Heart Disease Affect My Pregnancy?
If you have adult congenital heart disease, it's important to see a specialist and learn how it might affect your pregnancy.
FAQs: Cardiac Rehabilitation for Kids
Because cardiac rehabilitation involves regular exercise training, it is sometimes counter-intuitive to those parents who have children with a heart condition. Read FAQs to help parents become more comfortable with their child's participation.
Babies Born with a Heart Defect: Resources for Families
When families receive the news that their baby has a heart defect, it can bring about a wave of emotions. A pediatric cardiologist offers some reliable resources and information to help instill a sense of hope.
A Lot of Faith Needed: Tetralogy of Fallot, Chromosomal Disorder Diagnoses
Alana was born with a complex combination of conditions, including tetralogy of Fallot (TOF), pulmonary atresia, and major aortopulmonary collateral artery. Read why her parents needed a lot of faith and the right specialists to treat her complicated heart condition.
Pulmonary Hypertension, HHT & New Year’s Resolutions
The last two years have rocked the Wiegele family's world. They have seen a lot of their friends with pulmonary hypertension pass away. They also learned that their daughter, Riley, may need a lung transplant down the road. Read about their New Year's resolution and how they plan to make new memories.
Tetralogy of Fallot: When The Words “Thank You” Aren’t Enough
A mother describes how the words "thank you" really aren't enough for relaying the gratitude she feels towards her son's heart surgeon, who repaired his tetralogy of Fallot. "Every night, when I tuck my son in to bed, I rest my hand on his chest, a ritual of gratitude as his heart gently beats underneath my palm."
Top 5 Things to Know About the Heart in Duchenne Muscular Dystrophy
Because overall treatment has vastly improved for Duchenne muscular dystrophy (DMD) over the last couple of decades, the heart has become a major focus area for both doctors and researchers. One of our cardiologists shares the top five things parents should know about the heart as it relates to DMD.
Adult with Hypoplastic Left Heart Syndrome Celebrates Major Birthday Following SCA
Austin celebrates his 25th birthday in May. It’s quite a milestone, given that his heart stopped beating three years ago on a softball field. He was born with hypoplastic left heart syndrome and has had quite the journey since then.
6 Steps Parents Can Take to Keep Kids’ Hearts Healthy
Heart health is important for adults AND kids alike. There is some research to suggest that heart disease can start in childhood – and perhaps even in utero during pregnancy. Here are important preventive steps parents can take to keep their kids’ hearts healthy:
Born with Congenital Heart Disease: Questions to Ask A Doctor
Adults who were born with congenital heart disease (ACHD) need to be followed by a cardiologist with specific training on the condition, and have a continuous dialogue about heart health along the way. Read a list of suggested questions to keep the conversation going.
A Connection Between Dementia and Congenital Heart Disease
Researchers found a relationship between dementia and congenital heart disease. Read six things to know about the findings:
Hypoplastic Left Heart Syndrome: A Letter to Our Son’s Heart Donor Family
Eli was born with hypoplastic left heart syndrome and soon after needed a heart transplant. Read how grateful his family is to his heart donor and family.
A Mother’s Perspective: Finding the Right Pediatric Cardiologist
Read why this heart mom hasn't stopped worrying about her son's heart 26 years later, and why it is important to find the right pediatric cardiologist.
Born with Congenital Heart Disease: 5 Things I Wish I’d Done Differently
Jennie was born with congenital heart disease but is now an adult. Read why she considers herself lucky in health and life and what she'd do differently.
Pulmonary Hypertension: How We’ve Adapted to Our Daughter’s Condition
Riley's mom feels fortunate that her daughter avoided the serious symptoms of pulmonary hypertension while seeking a diagnosis. Read how they've adapted
Tetralogy of Fallot: Giving Thanks on Henry’s Second Anniversary
A mother gives thanks to the staff who shepherded her, her son, and her family through her son's tetralogy of Fallot diagnosis, surgery and beyond.
Top 5 Things to Remember About Kawasaki Disease
Kawasaki disease is the leading cause of acquired heart disease in children. While is it rare, it can easily be misdiagnosed as other more common viral illnesses. Here are 5 things parents should know about the disease.