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HOME/Safety and Prevention/Infant Botulism: Guidance for Families

Infant Botulism: Guidance for Families

Infant Botulism: Guidance for Families
December 4, 2025
Felicia Scaggs Huang, MD, MSc
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When it comes to our babies, even the smallest health concern can feel overwhelming. News about infant botulism linked to ByHeart Whole Nutrition infant formula has understandably raised alarm among families. If you’re worried, you are not alone. The good news is that infant botulism is rare. Most infants who drank ByHeart formula will not develop the illness. Still, it’s natural to feel anxious, and having clear, practical steps can help you feel more in control.

Let’s walk through what infant botulism is, when to get medical care, and what you should do if you have ByHeart formula at home.

What Is Infant Botulism?

Infant botulism is caused by bacteria that make a toxin (poison) affecting the nervous system. It can lead to muscle weakness and feeding difficulties in babies under one year old. While the condition is serious, it is also rare. Most infants – even those who drank ByHeart formula – will stay healthy.

Do Babies Need Testing?

One of the most common questions parents ask is: Should my baby be tested for botulism just in case?

The answer is reassuring: No testing is needed if your baby has no symptoms. Testing for infant botulism is highly specialized. It is only done at a few labs in the United States, and needs approval from state public health authorities.

So unless your baby shows signs of illness, there is no need for testing.

When to Get Medical Care

There’s no need to panic, but it is important to watch your baby closely. Get immediate medical care if your baby drank ByHeart formula in the past 30 days and develops any of the following symptoms:

  • Constipation
  • Poor feeding or difficulty swallowing
  • Weak cry or weak facial expressions
  • Loss of head control

These symptoms may signal infant botulism, and quick medical attention is critical. Medical teams may perform testing for other medical issues and not just infant botulism if your baby is sick.

There is Effective Medical Treatment

Infant botulism it is a treatable condition with an antitoxin called BabyBIG®. Some babies need supportive care like IV fluids, tube feeding or respiratory support with a breathing tube and ventilator. Treatment is a medical emergency. Babies may be hospitalized for days to weeks if they are diagnosed with infant botulism.

What Families Should Do With ByHeart Formula

If you have ByHeart Whole Nutrition infant formula at home, here are the recommended steps:

  • Stop using the formula immediately. Label any cans in your home as “Do Not Use.”
  • Store the formula for one month. Set it aside in the original container with the lot number and expiration date printed on it. This information may be important if your local health department needs to test the product.
  • Throw away after one month if no symptoms appear. If your baby stays healthy for a month after their last use, you can throw the formula away.

This waiting period is important so that the formula is available for testing, if symptoms start.

Cleaning and Safety Measures

Clean any items that the formula touched:

  • Wash bottles, nipples, pacifiers, and surfaces with hot, soapy water.
  • Use a dishwasher (if available) for thorough sanitation.

These steps reduce any chance of additional contamination.

Reassurance for Families

It’s natural to feel frightened when you hear about infant botulism. But here are some important points to keep in mind:

  • Infant botulism is rare. Most babies who drank ByHeart formula will not be affected.
  • You are not expected to manage this alone. Doctors and local health departments will help guide families if concerns arise.
  • Take the steps you can take now: watching for symptoms, storing formula, cleaning items.

Contact Your Baby’s Doctor if You’re Worried

Parenting often means navigating unexpected challenges. While this situation may feel stressful, being informed and prepared is the best defense. By following the steps above, you are already protecting your baby.

If you find yourself feeling anxious, reach out to your pediatrician. Talking through your concerns with a trusted healthcare provider can ease worry and give you confidence in your next steps.

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About the author: Felicia Scaggs Huang, MD, MSc

Dr. Scaggs Huang is the Associate Director of Infection Prevention and Control at Cincinnati Children’s. She is a pediatric infectious disease physician who has clinical interest in preventing hospital acquired infections in critically ill children. She is a member of the preparedness team for COVID-19.

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