Health Issue: Born with Heart Defect and Lost to Care
About 550,000 teens and adults are "lost to care": Born with a heart condition and are not being cared for by a doctor trained to treat and manage them.
Born With a Heart Defect: Q&A About The COVID-19 Vaccine
At last the coronavirus COVID-19 vaccine is here. In Ohio, Phase 1b includes vaccinations for those with preexisting medical conditions. What does that mean for people who have adult congenital
How Will Congenital Heart Disease Affect My Pregnancy?
If you have adult congenital heart disease, it's important to see a specialist and learn how it might affect your pregnancy.
He Said Yes: Our Whirlwind Wedding Before My Heart Failure Procedure
Not many people get married four days after a proposal. But for Shannon, being married was the one thing she thought would comfort her as she headed into a high-risk procedure for heart failure, or severe right ventricular dysfunction. Read all about their big day.
Born with Congenital Heart Disease: Questions to Ask A Doctor
Adults who were born with congenital heart disease (ACHD) need to be followed by a cardiologist with specific training on the condition, and have a continuous dialogue about heart health along the way. Read a list of suggested questions to keep the conversation going.
Born with Congenital Heart Disease: 5 Things I Wish I’d Done Differently
Jennie was born with congenital heart disease but is now an adult. Read why she considers herself lucky in health and life and what she'd do differently.
Having Adult Congenital Heart Disease Hasn’t Slowed Me Down
Despite being born with a heart defect, this mom of three lives a fulfilling, active life. Read why she sees an adult congenital heart disease cardiologist.
Living with Congenital Heart Disease: Are You Lost to Care?
Four questions to help you decide if you or a loved one are lost to care, many years after having heart problems or surgery as a young child.