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adult congenital heart disease

Healthy Living
Caring for the Caregivers of Children with Congenital Heart Disease 
19
Dec 2022
Caring for the Caregivers of Children with Congenital Heart Disease 
Learning your child has a heart condition can be overwhelming. It can bring a whirlwind of thoughts and feelings. Here are some tips and resources that can help.
By: Nadine Kasparian, PhD | 0
Healthy Living
A Lifetime of Care – Transitioning from Pediatric to Adult Cardiology
26
Jan 2022
A Lifetime of Care – Transitioning from Pediatric to Adult Cardiology
When I was born, I was diagnosed with a serious heart condition and my parents were told I might not survive the night. The experts at Cincinnati Children’s were called in immediately, and 28 years later, I’m still going there for care. I was diagnosed with a bicuspid aortic valve, and cardiologist appointments filled my
By: Ashleigh Westheider | 2
Heart Conditions
Born with a Heart Defect and Lost to Care
02
Feb 2021
Born with a Heart Defect and Lost to Care
About 550,000 teens and adults are "lost to care": Born with a heart condition and are not being cared for by a doctor trained to treat and manage them.
By: Andrew Redington, MD | 7
Heart Conditions
Born With a Heart Defect: Q&A About The COVID-19 Vaccine 
27
Jan 2021
Born With a Heart Defect: Q&A About The COVID-19 Vaccine 
At last the coronavirus COVID-19 vaccine is here. In Ohio, Phase 1b includes vaccinations for those with preexisting medical conditions. What does that mean for people who have adult congenital heart disease (ACHD)? Read on for answers to questions we’ve been getting from the adult patients we follow who were born with a congenital heart
By: Craig Alexander, MD | 1
Fetal Conditions
How Will Congenital Heart Disease Affect My Pregnancy?
21
Jan 2021
How Will Congenital Heart Disease Affect My Pregnancy?
If you have adult congenital heart disease, it's important to see a specialist and learn how it might affect your pregnancy.
By: Nicole Brown, MD | 6
Heart Conditions
When His Heart Stopped: Lifesaving Congenital Heart Care for My Adult Son
15
May 2019
When His Heart Stopped: Lifesaving Congenital Heart Care for My Adult Son
Austin celebrates his 25th birthday in May. It’s quite a milestone, given that his heart stopped beating three years ago on a softball field. He was born with hypoplastic left heart syndrome and has had quite the journey since then.
By: Angela McKinney | 3
Heart Conditions
Born with Congenital Heart Disease: Questions to Ask A Doctor
24
Oct 2018
Born with Congenital Heart Disease: Questions to Ask A Doctor
Adults who were born with congenital heart disease (ACHD) need to be followed by a cardiologist with specific training on the condition, and have a continuous dialogue about heart health along the way. Read a list of suggested questions to keep the conversation going.
By: Nicole Brown, MD | 0
Heart Conditions
A Connection Between Dementia and Congenital Heart Disease
13
Mar 2018
A Connection Between Dementia and Congenital Heart Disease
Researchers found a relationship between dementia and congenital heart disease. Read six things to know about the findings:
By: Dr. Nicolas Madsen | 0
Heart Conditions
Born with Congenital Heart Disease: 5 Things I Wish I’d Done Differently
01
Feb 2018
Born with Congenital Heart Disease: 5 Things I Wish I’d Done Differently
Jennie was born with congenital heart disease but is now an adult. Read why she considers herself lucky in health and life and what she'd do differently.
By: Jennie Fox | 7
Heart Conditions
Adults with Congenital Heart Disease: Do You Struggle with Executive Functioning?
26
Oct 2017
Adults with Congenital Heart Disease: Do You Struggle with Executive Functioning?
If you're an adult with congenital heart disease, you are at-risk for having executive functioning issues. Answer these questions to assess your risk.
By: Christina Holbein, PhD | 1
Heart Conditions
Having Adult Congenital Heart Disease Hasn’t Slowed Me Down
03
Jan 2017
Having Adult Congenital Heart Disease Hasn’t Slowed Me Down
Despite being born with a heart defect, this mom of three lives a fulfilling, active life. Read why she sees an adult congenital heart disease cardiologist.
By: Holly Lawson | 0
Heart Conditions
Living with Congenital Heart Disease: Are You Lost to Care?
22
Jul 2016
Living with Congenital Heart Disease: Are You Lost to Care?
Four questions to help you decide if you or a loved one are lost to care, many years after having heart problems or surgery as a young child.
By: Andrew Redington, MD | 1
Heart Conditions
Future Pregnancy After CHD Diagnosis: 3 Things To Know
02
Jun 2016
Future Pregnancy After CHD Diagnosis: 3 Things To Know
If your baby was born with congenital heart disease (CHD), you might be wondering what to do for future pregnancies. Here's what you need to know.
By: Peace Madueme, MD | 20
Heart Conditions
Getting the Green Light: Pregnancy with Adult Congenital Heart Disease
02
May 2016
Getting the Green Light: Pregnancy with Adult Congenital Heart Disease
One mother explains the process of getting the "green light" for pregnancy with adult congenital heart disease.
By: Katie Binzer | 3

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