A Tale of Two Heart Transplants
One Family. Two diagnoses of restrictive cardiomyopathy. Two kids needing heart transplants within three years of each other.
What You Need To Know About Cardiomyopathy Right Now
Cardiomyopathy affects nearly 30,000 children in the US. This infographic teaches symptoms to watch for to help with early detection.
Teen Feels ‘Hopeful’ After Experimental Stem Cell Procedure on Damaged Heart
A brief summary of and link to a story about an experimental stem cell heart procedure for a patient with Duchenne Muscular Dystrophy.
Heart to Heart: Ryan Meets Kirk Urso – Part 2
When Ryan met Columbus Crew player Kirk Urso, he had a new friend and role model. Little did they know they were both living with congenital heart disease.
Sudden Cardiac Arrest and Your Teen Athlete
While sudden cardiac arrest in the young is rare, it often quickly leads to death. Here's what you need to know in case it does happen.
Liam’s Heart and Maren’s Liver: Organ Transplant Story – Part I
Liam Sprague and Maren Foster both needed an organ transplant - a heart for Liam and a liver for Maren. Their parents share their stories. Part 1 of 3.
Top Questions About Genetic Testing for Cardiomyopathy
Find answers to the most common questions about cardiomyopathy and genetic testing.
One day at a time: Recovery from heart failure, stroke, Castleman’s
Liam was a smart, funny and outgoing three-year-old boy. He walked and talked early and was advanced for his age. He loved dinosaurs and could even tell you which ones
Camp Joyful Hearts: A Summer Camp For Kids and Teens With Heart Disease
Last Summer I had the honor of being an older camper and camp counselor at Camp Joyful Hearts, a residential summer camp for kids and teens that have heart disease.
Seacrest Studios Performance Was My Victory Lap
After receiving a diagnosis of restrictive cardiomyopathy, Liz turned to music. Read about her journey to receiving a heart transplant and how music helped her along the way.
Today We Celebrate Tiernee’s One Year Anniversary
When you hear of someone celebrating a milestone, weddings, anniversaries and graduations probably come to mind. Today we celebrate a different kind of milestone: one year living with a Total
You Can Save A Life: AEDs Are Simple To Use And Require No Experience
The functionality of an AED (Automated External Defibrillator) is complex. It evaluates the heart rhythm and delivers an electric shock to the heart when it unexpectedly stops. It’s no wonder
What Your Heart History Has To Do With Your Kid’s Sports
It’s a story that we hear too often: a student athlete shoots a game-winning shot and collapses during the celebration. In many cases the underlying cause of that fatal collapse
Fighting Cardiomyopathy as a Family
When Terri discovered she had cardiomyopathy, she brought her family to Cincinnati Children's for genetic testing & ongoing care. Read their story.