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cardiomyopathy

Heart Conditions
Former CICU Nurse Gives Back After Son’s Sudden Cardiac Arrest
23
Feb 2023
Former CICU Nurse Gives Back After Son’s Sudden Cardiac Arrest
A mom explains how quick response, CPR, and an AED saved her son during sudden cardiac arrest, and why she's involved with Project ADAM.
By: Brenda Williams, RN | 2
Heart Conditions
You Can Save A Life: AEDs Are Simple To Use And Require No Experience
03
Apr 2022
You Can Save A Life: AEDs Are Simple To Use And Require No Experience
The functionality of an AED (Automated External Defibrillator) is complex.  It evaluates the heart rhythm and delivers an electric shock to the heart when it unexpectedly stops. It’s no wonder that an American Heart Association study revealed that only 15 percent of people feel confident they could use an AED in an emergency. However, using an AED
By: Adam Powell, MD | 0
Heart Conditions
Sudden Cardiac Arrest and Your Teen Athlete
04
Jan 2022
Sudden Cardiac Arrest and Your Teen Athlete
While sudden cardiac arrest in the young is rare, it often quickly leads to death. Here's what you need to know in case it does happen.
By: Jeff Anderson, MD, MPH, MBA | 2
Heart Conditions
FAQs: Cardiac Rehabilitation for Kids
10
Aug 2020
FAQs: Cardiac Rehabilitation for Kids
Because cardiac rehabilitation involves regular exercise training, it is sometimes counter-intuitive to those parents who have children with a heart condition. Read FAQs to help parents become more comfortable with their child's participation.
By: Sam Wittekind, MD | 0
Heart Conditions
What You Need To Know About Cardiomyopathy Right Now
29
Sep 2016
What You Need To Know About Cardiomyopathy Right Now
Cardiomyopathy affects nearly 30,000 children in the US. This infographic teaches symptoms to watch for to help with early detection.
By: Thomas Ryan, MD, PhD | 0
Heart Conditions
Heart to Heart: Ryan Meets Kirk Urso – Part 2
05
Mar 2016
Heart to Heart: Ryan Meets Kirk Urso – Part 2
When Ryan met Columbus Crew player Kirk Urso, he had a new friend and role model. Little did they know they were both living with congenital heart disease.
By: Kevin and Emilie Moore | 0
Rare and Complex Conditions
Liam’s Heart and Maren’s Liver: Organ Transplant Story – Part I
01
Sep 2015
Liam’s Heart and Maren’s Liver: Organ Transplant Story – Part I
Liam Sprague and Maren Foster both needed an organ transplant - a heart for Liam and a liver for Maren. Their parents share their stories. Part 1 of 3.
By: Cincinnati Children's Social Media Team | 3
Heart Conditions
Top Questions About Genetic Testing for Cardiomyopathy
27
Aug 2015
Top Questions About Genetic Testing for Cardiomyopathy
Find answers to the most common questions about cardiomyopathy and genetic testing.
By: Thomas Ryan, MD, PhD | 16
Heart Conditions
One day at a time: Recovery from heart failure, stroke, Castleman’s
14
Jul 2015
One day at a time: Recovery from heart failure, stroke, Castleman’s
Liam was a smart, funny and outgoing three-year-old boy. He walked and talked early and was advanced for his age. He loved dinosaurs and could even tell you which ones ate meat and which one could fly. On June 4, 2013 we took him to our local ER in Indianapolis for a cough that wouldn’t
By: Carolynn Sprague | 1
Heart Conditions
15
Jun 2015
Camp Joyful Hearts: A Summer Camp For Kids and Teens With Heart Disease
Last Summer I had the honor of being an older camper and camp counselor at Camp Joyful Hearts, a residential summer camp for kids and teens that have heart disease. It’s such an amazing camp and experience for these kids because they don’t have to feel limited by their heart disease – there is a
By: Lydia Clark | 0
Heart Conditions
Seacrest Studios Performance Was My Victory Lap
09
Dec 2013
Seacrest Studios Performance Was My Victory Lap
After receiving a diagnosis of restrictive cardiomyopathy, Liz turned to music. Read about her journey to receiving a heart transplant and how music helped her along the way.
By: Elizabeth Sampson | 1
Heart Conditions
Today We Celebrate Tiernee’s One Year Anniversary
08
Nov 2013
Today We Celebrate Tiernee’s One Year Anniversary
When you hear of someone celebrating a milestone, weddings, anniversaries and graduations probably come to mind. Today we celebrate a different kind of milestone: one year living with a Total Artificial Heart. One year ago today, Tiernee Gonzalez (pictured above, middle, with her care team) created history. On November 8, 2012, she became the first female
By: Megan del Corral, RN, BSN, CCRN | 4
Heart Conditions
What Your Heart History Has To Do With Your Kid’s Sports
26
Mar 2013
What Your Heart History Has To Do With Your Kid’s Sports
It’s a story that we hear too often:  a student athlete shoots a game-winning shot and collapses during the celebration.  In many cases the underlying cause of that fatal collapse is sudden cardiac arrest (SCA) caused by an undiagnosed form of cardiomyopathy.  Student athletes can have cardiomyopathy, a disease of the heart muscle itself, without
By: Dr. John Lynn Jefferies | 6
Featured Faces
 

14
Aug 2012
Fighting Cardiomyopathy as a Family
When Terri discovered she had cardiomyopathy, she brought her family to Cincinnati Children's for genetic testing & ongoing care. Read their story.
By: Terri Calla | 3
Safety and Prevention
 

03
Jul 2012
When teen athletes collapse
It happens. Sometimes teen athletes collapse after showing no apparent warning signs. It happened to Sarah (Steel) Anderson. She went into cardiac arrest at 12 years old after coming home from a cheerleading camp. While she had never shown signs of heart problems, what happened to her uncovered hypertrophic cardiomyopathy that runs in her family.
By: Tanya Leach | 0

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