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chiari malformation

Rare and Complex Conditions
A Trifecta of Diagnoses: Chiari Malformation, Pectus Excavatum, Ehlers-Danlos
23
Jan 2019
A Trifecta of Diagnoses: Chiari Malformation, Pectus Excavatum, Ehlers-Danlos
It wasn’t until Nicole was in her mid-twenties that she discovered she had three major health conditions: Chiari malformation, pectus excavatum and Ehlers-Danlos syndrome. Read about her long road to receive those diagnoses, and how she advocated for herself along the way.
By: Nicole Stout | 3
Rare and Complex Conditions
Chiari Malformation: Before and After Decompression Surgery
28
Oct 2015
Chiari Malformation: Before and After Decompression Surgery
Brothers Jacob and Dylan were both diagnosed with Chiari Malformation as infants. Read about their journey before and after decompression surgery.
By: Leeann Fitzpatrick | 8
Rare and Complex Conditions
10 Tips for Parents of Kids with Chiari Malformation
23
Sep 2015
10 Tips for Parents of Kids with Chiari Malformation
Matthew had decompression surgery for Chiari malformation at age 4. Here, his mom offers tips on how to manage this challenging condition.
By: Merideth Rought | 21
Rare and Complex Conditions
Savannah Spreads Holiday ‘Cheer’ Before Brain Surgery
11
Dec 2013
Savannah Spreads Holiday ‘Cheer’ Before Brain Surgery
Today, after months of planning, Savannah Day (pictured above in the middle) and her sisters finally got to see all of their hard work pay off. All in one place, in a super-sized mound of toys. When Savannah and her sisters set out to brighten the holidays for other kids spending Christmas in the hospital,
By: Blog Editorial Team | 2

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