Tag: "cleft lip and palate"
Preparing for a Baby with a Cleft Lip/Palate
Preparing for a newborn is an exciting time for any parent. Here are some things to consider when you're preparing for a baby with a cleft lip/palate.
Traveling for our Son’s Endoscopic Craniosynostosis Surgery: What We Learned
For parents who may be in the middle of a craniosynostosis journey with their child, here's what one mom learned about getting second opinions, traveling for care, and helmet therapy.
From Undiagnosed to Bohring-Opitz Syndrome: Finding Our Crew
It took Michelle 10 years to find a diagnosis for her daughter's ultra-rare condition, Bohring-Opitz Syndrome. Read why she's happy to find their "crew."
Thoughts Before, During and After Mia’s Cleft Lip Surgical Repair
A family shares their cleft lip surgery story and their thoughts throughout the process. Read how they fell madly in love with their daughter's new smile.
Portrait of a Soul – The Healing Power of Art
Beautiful. A picture may be worth a thousand words, but “beautiful” is the best way to describe the paintings unveiled to families for the first time at the recently opened
Let’s Talk About Clefts
Each year, the month of July is the CDC’s Cleft and Craniofacial Awareness and Prevention Month. I actively worked to raise awareness this year during July, as I have for the