Tag: "congenital heart defects"
22q11.2 Deletion Syndrome: Like Mother, Like Daughter
McKenna has her mother's eyes, hair, and smile. She also has the same deletion syndrome, 22q. What makes their story interesting is that her mother, Robin, didn't realize she had this syndrome until after McKenna was born. Read what this means and how they're celebrating small victories.
Hypoplastic Left Heart Syndrome: A Letter to Our Son’s Heart Donor Family
Eli was born with hypoplastic left heart syndrome and soon after needed a heart transplant. Read how grateful his family is to his heart donor and family.
A Mother’s Perspective: Finding the Right Pediatric Cardiologist
Read why this heart mom hasn't stopped worrying about her son's heart, 20 years later, and why it is important to find the right pediatric cardiologist.
Tetralogy of Fallot: Giving Thanks on Henry’s Second Anniversary
A mother gives thanks to the staff who shepherded her, her son, and her family through her son's tetralogy of Fallot diagnosis, surgery and beyond.
Hear the Hope: Creating Songs with Patients and Caregivers
The back story of Hear the Hope: A charitable organization that raises funds for patients' medical bills by creating songs with patients and caregivers.
Our No-Longer-Conjoined Twins’ 2nd Birthday: A Victory Celebration
No-longer-conjoined twins Selah and Shylah celebrate their second birthday. Their mom, Misty, reflects upon how far they've come.
45 Year Old Runs Marathon with Transposition of the Great Arteries
Kevin Cobb, born with transposition of the great arteries 45 years ago, ran a marathon two years following a heart transplant.
Fit Hearts Program Trains Cardiac Patients for Progressive Marathon
Our Fit Hearts program teaches cardiac patients how to be physically active on their own by training for a progressive marathon.
Henry’s Future with Tetralogy of Fallot
Following her son's surgery for tetralogy of Fallot, Laura reflects on how quickly they went from living in the moment to looking toward the future.
Heart to Heart: Ryan Goes to Washington, DC – Part 3
Heart advocate Ryan Moore works to spread awareness for congenital heart defects, like the kind he was diagnosed with at birth, in hopes of finding a cure.
Heart to Heart: Ryan Meets Kirk Urso – Part 2
When Ryan met Columbus Crew player Kirk Urso, he had a new friend and role model. Little did they know they were both living with congenital heart disease.
Heart to Heart: Ryan and Kirk’s CHD Story – Part 1
Ryan continues to tell his inspiring congenital heart disease story in books, on Capitol Hill and to other CHD families in hopes of someday finding a cure.
Children’s gets $32.5M for heart research
A brief summary of and link to a story about Cincinnati Children's $32.5 million federal grant to study congenital heart defects.
New Animations: Surgical Repair of Congenital Heart Disease
To help families better understand and describe the surgical repair for their child's congenital heart disease, we developed these animated videos.
Patient Story Videos You Shouldn’t Miss
Patients and families share their stories in eight not-to-be-missed videos posted over the course of 2015 on Cincinnati Children's YouTube channel.
Woman shares message of hope with others
A brief summary of and link to a Local12.com story about a woman with hypoplastic left heart syndrome and her journey at Cincinnati Children's.
Sharing Asia’s Heart Transplant Story Is Like Throwing A Pebble In The Water
Asia hopes sharing her heart transplant story will help encourage others to consider organ donation. She had a transplant as a baby and is now thriving.
Camp Joyful Hearts: A Summer Camp For Kids and Teens With Heart Disease
Last Summer I had the honor of being an older camper and camp counselor at Camp Joyful Hearts, a residential summer camp for kids and teens that have heart disease.
Congrats Grads! Celebrating the Class of 2015
Congratulations to members of the graduating Class of 2015! Our care teams have had the pleasure of getting to know these incredible young people over the years while they have been patients at