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Rare and Complex Conditions
How I Became an Advocate for My Child’s Rare Condition
29
Feb 2020
How I Became an Advocate for My Child’s Rare Condition
My child has a condition called MFDM that affects only about 200 people in the entire world. When he was diagnosed with such a rare condition, we felt incredibly alone. I needed to connect with other families who would understand.
By: Brittney Underwood | 1
Fetal Conditions
25
Jun 2018
Role Reversal: NICU Nurse Becomes A Patient
Melissa has been a nurse at Cincinnati Children's NICU for 16 years. But it wasn't until she became a patient herself that she could truly understand what her patients go through.
By: Melissa Kingma | 5
Rare and Complex Conditions
Thoughts Before, During and After Mia’s Cleft Lip Surgical Repair
04
Apr 2017
Thoughts Before, During and After Mia’s Cleft Lip Surgical Repair
A family shares their cleft lip surgery story and their thoughts throughout the process. Read how they fell madly in love with their daughter's new smile.
By: Christen Kauffman | 2
Patient Family Experience
Portrait of a Soul – The Healing Power of Art
18
Jun 2015
Portrait of a Soul – The Healing Power of Art
Beautiful. A picture may be worth a thousand words, but “beautiful” is the best way to describe the paintings unveiled to families for the first time at the recently opened Portrait of a Soul exhibition. Portrait of a Soul is a project commissioned by philanthropists Lee and Sue Schaefer to help boost confidence and self-esteem
By: Blog Editorial Team | 2
Featured Faces
Countdown to Surgery: Ashleigh’s Cleft Story
16
Dec 2012
Countdown to Surgery: Ashleigh’s Cleft Story
My name is Ashleigh Baker and I have been a Cincinnati Children’s patient my whole life. I was born with a unilateral cleft lip and palate and I have been patiently waiting my tenth surgery which is finally tomorrow! As if it isn’t hard enough to transition to college life I am currently battling constant
By: Ashleigh Baker | 5

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