Tag: "cystic fibrosis"
Cystic Fibrosis Questionnaire: Is Your Adolescent Ready for Independence?
By learning how to care for themselves, kids with cystic fibrosis gain skills they need to be healthy adults. Take our survey to see if your child is ready.
Why I’m Hopeful: Promising Research For Kids with Intestinal Disorders
A mother is excited about new research that could potentially help her daughter, who has cystic fibrosis and short bowel syndrome (intestinal disorders).
Samantha’s Adventures With New Lungs
Since Sam's life-saving double lung transplant for cystic fibrosis, she's enjoyed life with new lungs and kept the memory of her donor close to her heart.
Lung Transplant: Beginning My Transformation
A young adult patient with cystic fibrosis (CF) finds freedom and gets a second lease on life after a live-saving double lung transplant.
Music and Cystic Fibrosis – Love and Healing
To say that music is healing is a vast understatement. To me, music means having the ability to get lost in rhythms that warm your soul and transform your pain
ParentTOUCH Volunteer Gives Others A Hand to Hold On To
This month we are sharing reader-submitted stories that reveal the true spirit of the holiday season. This is Erin’s story of understanding and friendship when it’s needed most. My name
NHLBI Launches Program on Early Cystic Fibrosis Lung Disease
A multi-center program hopes to provide a roadmap for preventing early cystic fibrosis (CF) lung disease in infants and young children. Researchers, including Dr. John Clancy from Cincinnati Children’s, plan to