Tag "cystic fibrosis"

There was a time when children with cystic fibrosis weren’t expected to live past elementary school. Now, for the first time, there are more adults living with cystic fibrosis than children. Cystic fibrosis is a genetic condition that affects the › Continue Reading

There is nothing worse than watching your child go through something excruciating and being unable to stop it. Sarhea’s Birth Story On a Tuesday morning, my daughter Sarhea (Suh-ray-uh) was born via emergency cesarean section due to her not responding during › Continue Reading

I’ve been asked several times why the butterfly is such a meaningful symbol, not just for me and my fiancé Ty, but for the entire transplant population. And put quite simply, it’s important because a butterfly symbolizes hope. Before it › Continue Reading

Dr. Jason Woods’ research focuses on novel ways of imaging lung structure and function with techniques that don’t require sedation, anesthesia, or radiation. The two most promising techniques both use MRI—a modality that uses radio frequencies that are lower in energy › Continue Reading

Little did I know when I first shared my cystic fibrosis story in March 2015 that everything would begin to come full circle less than one month later. At that time, I’d been a patient at Cincinnati Children’s for 20 › Continue Reading

Cystic fibrosis, or CF, is the most common life shortening inherited disease in the Caucasian population. CF affects about 50,000 people in the United States. Problems with the lungs are the most obvious feature of CF, but the disease affects › Continue Reading

To say that music is healing is a vast understatement. To me, music means having the ability to get lost in rhythms that warm your soul and transform your pain into joy. And when creating music, I find the experience › Continue Reading

My daughter has had a few CT scans due to complications from cystic fibrosis.  She was very young and had to be put under general anesthesia, but I never knew what a CT with contrast felt like–until recently. In October, I gave birth to › Continue Reading

It’s Breastfeeding Awareness Week! Breast milk, which is also referred to as “liquid gold,” is amazing. It provides complete nutrition for most infants. My daughter was born with an intestinal blockage called meconium ileus, a complication of Cystic Fibrosis, and in the beginning › Continue Reading

My Difficult News

No one wants to hear bad news. There’s nothing worse on the face of the planet than to hear that there is something seriously wrong with your child. I know this feeling all too well. When my daughter was just › Continue Reading

This month we are sharing reader-submitted stories that reveal the true spirit of the holiday season. This is Erin’s story of understanding and friendship when it’s needed most. My name is Erin Moore and I am the mother of 4 › Continue Reading

A multi-center program hopes to provide a roadmap for preventing early cystic fibrosis (CF) lung disease in infants and young children. Researchers, including Dr. John Clancy from Cincinnati Children’s, plan to study pre-symptomatic lung disease in children with CF under a › Continue Reading

Moving forward, our weekly roundup “This Week in Health News,” will evolve to take a closer look at Cincinnati Children’s internal developments and press coverage. After all, our goal is to communicate the insights, research, achievements and leadership that makes Cincinnati Children’s › Continue Reading