Tag: "cystic fibrosis"
Cystic Fibrosis Questionnaire: Is Your Adolescent Ready for Independence?
By learning how to care for themselves, kids with cystic fibrosis gain skills they need to be healthy adults. Take our survey to see if your child is ready.
Why I’m Hopeful: Promising Research For Kids with Intestinal Disorders
A mother is excited about new research that could potentially help her daughter, who has cystic fibrosis and short bowel syndrome (intestinal disorders).
Samantha’s Adventures With New Lungs
Since Sam's life-saving double lung transplant for cystic fibrosis, she's enjoyed life with new lungs and kept the memory of her donor close to her heart.
Lung Transplant: Beginning My Transformation
A young adult patient with cystic fibrosis (CF) finds freedom and gets a second lease on life after a live-saving double lung transplant.
Music and Cystic Fibrosis – Love and Healing
To say that music is healing is a vast understatement. To me, music means having the ability to get lost in rhythms that warm your soul and transform your pain
ParentTOUCH Volunteer Gives Others A Hand to Hold On To
This month we are sharing reader-submitted stories that reveal the true spirit of the holiday season. This is Erin’s story of understanding and friendship when it’s needed most. My name
NHLBI Launches Program on Early Cystic Fibrosis Lung Disease
A multi-center program hopes to provide a roadmap for preventing early cystic fibrosis (CF) lung disease in infants and young children. Researchers, including Dr. John Clancy from Cincinnati Children’s, plan to
Cincinnati Children’s In the News
Moving forward, our weekly roundup “This Week in Health News,” will evolve to take a closer look at Cincinnati Children’s internal developments and press coverage. After all, our goal is to communicate
Dr. Jason Woods Takes Huge Strides in Imaging Lungs
Learn how Cincinnati Children's own Dr. Jason Woods is a pioneer in the field of imaging lung structure and function.
Imaging Children with Cystic Fibrosis
Cystic fibrosis, or CF, is the most common life shortening inherited disease in the Caucasian population. CF affects about 50,000 people in the United States. Problems with the lungs are
What Does a CT with Contrast Feel Like?
My daughter has had a few CT scans due to complications from cystic fibrosis. She was very young and had to be put under general anesthesia, but I never knew what a CT with
Breastfeeding Week: Donating Breast Milk
It’s Breastfeeding Awareness Week! Breast milk, which is also referred to as “liquid gold,” is amazing. It provides complete nutrition for most infants. My daughter was born with an intestinal blockage called meconium