Tag "down syndrome"

As a parent of a child was has Down syndrome, I am grateful to live in Cincinnati. Home to a vibrant and active Down Syndrome Association as well as one of the best children’s hospitals in the world, our city › Continue Reading

My daughter, Kate, has Down syndrome. We found out hours after she was born, hours after we thought she was not going to survive, because she could not breathe on her own. Today she is thriving. She goes to an › Continue Reading

September marks 20 years since Gretchen Koetters started at Cincinnati Children’s. She was one of the first graduates of a program that began at the medical center called Project SEARCH. It focuses on young people with disabilities between the ages › Continue Reading

This September marks my daughter’s, Gretchen’s, 20-year work anniversary at Cincinnati Children’s. It’s an exciting milestone for anyone, but it’s particularly remarkable for her. That’s because she has Down syndrome and 20 years ago it was not very common for › Continue Reading

Music means different things to different people. That’s the beauty of it. As a professional guitarist, it’s always been a part of my life. More recently, it helped me through some difficult moments. It also brings people together. I’m always › Continue Reading

My daughter Emma is a bright, funny and loving three-year-old girl. She’s also observant, quiet, and slightly reserved. And she has Trisomy 21 (Down syndrome), complete tracheal rings and laryngeal cleft. She’s taught me many lessons in her short life, › Continue Reading

My daughter, Jordan, is 18 years old and will be attending a post-secondary program in the fall. While this might sound like a typical path some students take, it is an achievement I wasn’t sure she would be able to › Continue Reading

Four-year-old Nora Chesnut helped carry the Flame of Hope as part of the Special Olympics Unified Relay Across America. The relay is a once in a lifetime experience that will deliver the torch from Athens, Greece to Los Angeles for › Continue Reading

One of the many difficulties with diagnosing sleep breathing disorders is first realizing your child actually has an issue. “My child snores a lot and is sleepy during the day,” or “He’s a very restless sleeper and it may be › Continue Reading