Tag "ehlers-danlos"

I exercised 478 days in a row. You’re probably assuming that I’m a body builder. Well, I guess in a way I sort of am.  I’ve learned how to “rebuild” my body so that I can function again. You see, › Continue Reading

It wasn’t until my mid-twenties that I discovered that I had three major health conditions. And to say that it took a long and painful road to get there is quite an understatement. The road involved two years of pain, › Continue Reading

Hannah Moore was much like any teenager, until she began to experience severe pain.  That’s when her fibromyalgia and Ehlers-Danlos syndrome were diagnosed. Now, she is largely back to being a normal teen, thanks in part to the Fit Teens › Continue Reading

At the beginning of 2016, I was miserable. My family was on vacation in Colorado so that we could ski, something we’ve been doing since I was little. The second day we were skiing I fell and landed on my › Continue Reading

Nicole Stouts struggled her entire life with a variety of chronic symptoms without a diagnosis. She recently received genetic testing at Cincinnati Children’s and was diagnosed with Ehlers Danlos syndrome (EDS), a connective tissue disorder. Stouts now sees a multidisciplinary team › Continue Reading

Fourteen-year-old Morgan McGee played soccer until Ehlers-Danlos syndrome made sports too painful and risky for her. Now she’s being treated at Cincinnati Children’s once a week to help her remain active. Physical therapist Nancy Durban is working with Morgan. “You’re › Continue Reading

For people with Ehlers-Danlos syndrome, a genetic disorder affecting the strength of collagen that provides the body support, structure, and stability, the road to diagnosis can be lengthy. The reasons for this can differ from person to person, but are › Continue Reading

You might have seen Hallie’s edition of Tell Me a Story. Her journey with pain as a patient with Ehlers-Danlos Syndrome (EDS) is familiar to us now, but several years ago, we had not recognized just how often EDS, a › Continue Reading