Functional Independence: Why I’ve Worked Out for 400+ Days
Before the Functional Independence Restoration Program, Ashten was in so much pain, including dislocations from ehlers-danlos syndrome, that he couldn't get out of bed. Read how this program helped him to rebuild his body so that he could function again -- including high school graduation and applying to colleges!
A Trifecta of Diagnoses: Chiari Malformation, Pectus Excavatum, Ehlers-Danlos
It wasn’t until Nicole was in her mid-twenties that she discovered she had three major health conditions: Chiari malformation, pectus excavatum and Ehlers-Danlos syndrome. Read about her long road to receive those diagnoses, and how she advocated for herself along the way.
Trial open to teens to help fight pain
Hannah Moore was much like any teenager, until she began to experience severe pain. That’s when her fibromyalgia and Ehlers-Danlos syndrome were diagnosed. Now, she is largely back to being
Ehlers-Danlos Syndrome: What I’ve Learned
Emma has Ehlers-Danlos and it has taught her how to break through obstacles and manage her chronic pain to live to a normal life. Read more of her story.
Local moms raise awareness of genetic condition
A brief summary of and link to a story about Nicole Stout's Ehlers-Danlos Syndrome diagnosis and multidisciplinary team treatment at Cincinnati Children's.
Cincinnati Children’s Helps Youth Battling Ehlers-Danlos Syndrome
Fourteen-year-old Morgan McGee played soccer until Ehlers-Danlos syndrome made sports too painful and risky for her. Now she’s being treated at Cincinnati Children’s once a week to help her remain
Ehlers-Danlos Syndrome: the lengthy road to diagnosis
Ehlers-Danlos Syndrome Hypermobility Type (EDS-HT) is difficult to diagnose and is often mistaken for growing pains. Learn what signs are normal in children and when to be concerned.