Tag "Epidermolysis Bullosa"

Cincinnati Children’s patient Brody Curtis has epidermolysis bullosa (EB), which makes his skin fragile like a butterfly’s wings. Brody’s mother, Heather Curtis, posted a video of Brody taking a bath to gain awareness for how difficult it is to live › Continue Reading

Scores of Cincinnati residents took a Polar Plunge to raise funds to fight a rare skin disorder that plagues a 15-year-old patient at Cincinnati Children’s. Shane DeGiovanna suffers from epidermolysis bullosa (EB), which prevents layers of skin from binding. To › Continue Reading

After months of treatment at Cincinnati Children’s for a rare genetic skin disorder, three-month-old Easton Friedel was welcomed home recently by a large crowd of family and friends. The Friedel family, from near Auburn, N.Y., brought Easton to Cincinnati Children’s › Continue Reading

It’s a moment new parents joyfully anticipate – cuddling with their newborn baby. But there have been precious few of those moments for the Friedels, whose son Easton was born with a rare genetic skin condition. One-month-old Easton has epidermolysis › Continue Reading

On Friday politicians, astronauts, family and friends gathered at Washington National Cathedral to say good-bye to astronaut Neil Armstrong, who died in Cincinnati on August 24 at the age of 82. Sitting among the famous faces in the crowd was › Continue Reading

Fourteen-year-old Shane DiGiovanna has wanted to be part of the exploration of space since he was a toddler. Today, he came one step closer when he met two men who have explored space and had the opportunity to ask them › Continue Reading