Tag "heart failure"

When parents first learn that their child has Duchenne muscular dystrophy (DMD), they are understandably worried. DMD is a genetic disease that causes muscles to weaken slowly over time. DMD is commonly diagnosed in childhood, when kids start missing major › Continue Reading

This is a tale that I never imagined I would be telling. A tale that involves both of my children being diagnosed with restrictive cardiomyopathy, and both needing heart transplants within three years of each other. Katie’s Tale It all › Continue Reading

I was born in Dayton, Ohio in 1971 with transposition of the great arteries (TGA). This means my pulmonary artery and aorta were in reverse position, preventing oxygen rich blood from pumping into the body. TGA babies had a blue tint › Continue Reading

Genetic testing can be a powerful tool in the management of cardiomyopathy. Familial cardiomyopathy is a disease of the heart muscle that is passed down through a family’s genes. It is a very serious disease that can lead to heart failure and › Continue Reading

When you hear of someone celebrating a milestone, weddings, anniversaries and graduations probably come to mind. Today we celebrate a different kind of milestone: one year living with a Total Artificial Heart. One year ago today, Tiernee Gonzalez (pictured above, › Continue Reading

This morning, Jason Williams of Peebles, OH, joined his doctors in a room full of news media representatives as they described the first-of-its-kind surgery that Jason agreed to at the beginning of September. He says it was as much for other Duchenne muscular dystrophy › Continue Reading