Tag "HLH"

I recently returned from a week-long test of my physical abilities and mental fortitude – an entirely voluntary, week-long bike ride through the mountains along the Blue Ridge Parkway to raise money for hemophagocytic lymphohistiocytosis (HLH) research. This particular bike › Continue Reading

As I prepare to ride a bike for 700 miles over the next seven days—for the third year in a row—I am both nervous and excited. Nervous because I know the ride is challenging. Excited because I am passionate about › Continue Reading

Below, you will find eight videos that were created in 2015 that you should’t miss. These stories did not find their way onto our blog or other social media channels in the last year, so we wanted to be sure to give › Continue Reading

In 2011, Justin Akin set off on a bike ride that was to be 1,216 miles between Amarillo, TX and Chicago, IL. He was riding his bike in memory of his sons Matthew and Andrew who both lost their lives › Continue Reading

Tomorrow I’ll be starting a journey that sounds almost ridiculous. On September 12, I will join 20 others as we set off on a 700-mile bike ride, pedaling about 100 miles a day for seven days, all the way from › Continue Reading

On Friday, cyclists who participated in the 700 Miles to Hope ride presented a check for $350,000 to Cincinnati Children’s HLH Center of Excellence to support research of hemophagocytic lymphohistiocytosis (HLH). The 700 Miles to Hope ride to increase awareness › Continue Reading

Sixteen cyclists are pedaling across five states and finishing at Cincinnati Children’s as part of an initiative called 700 Miles to Hope which is raising money and awareness for HLH, a rarely diagnosed immunodeficiency disease. The ride was organized by › Continue Reading

Dr. Ashish Kumar, a physician at Cincinnati Children’s, is biking across the nation as part of the 700 Miles to Hope ride in an effort to raise money and awareness for the immune disorder hemophagocytic lymphohistiocytosis (HLH). After seeing children › Continue Reading

When my husband and I made the decision to take our 3 year-old son, William, to the emergency department at Cincinnati Children’s on New Year’s Eve 2007, we had no idea how incredibly ill he was. The diagnosis of hemophagocytic › Continue Reading

Claire Biagnardi is a little girl from St. Louis who likes to put on sunglasses and ham it up as she plays her toy guitar. But the 3-year-old is providing big inspiration for a group of men who are bicycling › Continue Reading

Within the span of eight months, my husband Justin and I lost both of our boys to a condition called hemophagocytic lymphohistiocytosis or HLH. I often say that we have lived through every parent’s worst nightmare. Twice. Today, in July › Continue Reading

A road trip from Toronto to Sacramento by way of Calgary, Minnesota, Dayton and Cincinnati is certainly not the fastest route to take, but then, my trip wasn’t about making time, it was about taking time to honor the fight › Continue Reading