Tag "Langerhans cell histiocytosis"

“What’s this rash,” I asked our local pediatrician in Oklahoma as he was finishing my son Jonathan’s two-month check-up. There were a few small, scaly bumps on his back that wouldn’t go away. It looked odd, but babies get rashes › Continue Reading

A Familiar Place

What was once a very scary and confusing place is now a familiar and comforting place for me and my family. “I know this place like the back of my hand,” my 15-year-old daughter Andi said after telling me where › Continue Reading

When Joey Holt was 10, he suffered from chronic leg pains affecting his ability to walk. Doctors at Cincinnati Children’s Hospital Medical Center diagnosed Holt with Langerhans cell histiocytosis (LCH), a bone-eating disease that eventually caused Holt to have his hip replaced. › Continue Reading