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Rare and Complex Conditions
From My Perspective: A Doctor’s View of Multidisciplinary Care
04
Jan 2022
From My Perspective: A Doctor’s View of Multidisciplinary Care
A few years ago, I met a family from Minnesota seeking an additional opinion about care for their teenage son, Bryce. He had autism as well as liver disease, which had recently worsened. He had developed hepatic encephalopathy, a condition seen in advanced liver disease that causes confusion, irritability, change in school performance, disorientation, and
By: Amy E. Taylor, MD | 1
Rare and Complex Conditions
Liver Transplant Recipient Becomes Nurse on Same Floor
07
Dec 2021
Liver Transplant Recipient Becomes Nurse on Same Floor
The first day of a new job is always a mixture of emotions. For Kara Westra, things felt like they had become full circle. That's because she was once a patient on the liver transplant floor, and now she is a nurse treating the same types of patients.
By: Kara Westra, RN | 4
Rare and Complex Conditions
Giving the Gift of Life Twice: Living-Related Donor Transplant
28
Jan 2020
Giving the Gift of Life Twice: Living-Related Donor Transplant
Katherine was diagnosed with biliary atresia soon after birth and ultimately needed a liver transplant. Without a viable transplant option available, it was determined that her mother was a good living-related donor match. Read how she gave Katherine the gift of life twice!
By: Jessica Klein | 1
Rare and Complex Conditions
Liver Transplant Recipient Pursues Dream of Becoming A Pediatric Gastroenterologist
25
Apr 2019
Liver Transplant Recipient Pursues Dream of Becoming A Pediatric Gastroenterologist
Julie needed a liver transplant when she was 12 years old. Her medical care team inspired her so much that she wanted to become a pediatric gastroenterologist. 18 years later, she is very close to accomplishing that goal! Read how her own experience has influenced how she takes care of patients.
By: Julie Bonn, MD | 4
Cancer and Blood Diseases
Langerhans Cell Histiocytosis: Dabrafenib A Game Changer For My Son
06
Mar 2019
Langerhans Cell Histiocytosis: Dabrafenib A Game Changer For My Son
When a mom asked her pediatrician about the rash on her son's back, she thought she would get a simple answer. Instead, he received a diagnosis of Langerhans cell histiocytosis. This marked the beginning of a journey that would include traveling almost 900 miles for a life-saving therapy and liver transplant.
By: Rebecca Mauldin | 0
Rare and Complex Conditions
21
Jun 2018
From Foster Mom to Living-Transplant Donor: I Am A Match
Carissa went from being a foster mom, to a living-transplant donor, to an adoptive mom. Read about Sawyer's journey with biliary atresia, and everything in between.
By: Carissa Bailey | 0
Rare and Complex Conditions
From Liver Transplant to ‘Little Ball of Energy’
12
Aug 2016
From Liver Transplant to ‘Little Ball of Energy’
Allison has defied all of the odds following a biliary atresia diagnosis and a liver transplant. She has earned the nickname "little ball of energy".
By: Jen Herr | 2
Rare and Complex Conditions
Living-Related Donor Transplant: How It Changed Me
22
Oct 2015
Living-Related Donor Transplant: How It Changed Me
Hillary Weidner was her daughter's living-related donor transplant match, a procedure needed to treat biliary atresia.
By: Hillary Weidner | 0
Rare and Complex Conditions
Maren and Liam – The Gift of Life: Organ Transplant Story Part III
03
Sep 2015
Maren and Liam – The Gift of Life: Organ Transplant Story Part III
Maren and Liam are both growing and thriving thanks to organ transplant and their organ donor. Their families are forever connected.
By: Cincinnati Children's Social Media Team | 0
Rare and Complex Conditions
Liam’s Heart and Maren’s Liver: Organ Transplant Story – Part I
01
Sep 2015
Liam’s Heart and Maren’s Liver: Organ Transplant Story – Part I
Liam Sprague and Maren Foster both needed an organ transplant - a heart for Liam and a liver for Maren. Their parents share their stories. Part 1 of 3.
By: Cincinnati Children's Social Media Team | 3
Rare and Complex Conditions
Teen Advocating for Organ Donation Education in Ohio Schools
01
Jul 2015
Teen Advocating for Organ Donation Education in Ohio Schools
If you know me, you may notice that my life seems to have a recurring theme of nines. Until the age of nine, I was a perfectly healthy child; taking dance classes and playing in the local soccer league. But, at the age of nine, my immune system suddenly attacked my liver, causing it to
By: Emmalyn Brown | 2
Rare and Complex Conditions
My Second Chance: Life After Liver Failure
19
May 2015
My Second Chance: Life After Liver Failure
When I was 12 years old, after just a few weeks of being sick, I was told I had liver failure and seven days to live. I was immediately listed on the transplant waiting list and miraculously a liver was found for me the very next day. This experience and my post-transplant journey have shaped
By: Julie Bonn, MD | 4
Cancer and Blood Diseases
There is No Greater Gift
19
Sep 2013
There is No Greater Gift
September is a big month in our home for a few reasons. September is Childhood Cancer Awareness Month.  As a childhood cancer family, we try to spread the word as much as possible.  We wear gold.  We paint fingernails gold.  We plaster ribbons on our vehicles.  We write letters to papers and encourage support of families
By: Katie Clayton | 0

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