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Rare and Complex Conditions
27
Dec 2017
A Letter to My 1-Year-Old Son, Who Had an Encephalocele
A mother pens a letter to her son, who was born with a large encephalocele. Read her account of their tumultuous year and unconditional love.
By: Valeka Riegel | 14
Rare and Complex Conditions
Chiari Malformation: Before and After Decompression Surgery
28
Oct 2015
Chiari Malformation: Before and After Decompression Surgery
Brothers Jacob and Dylan were both diagnosed with Chiari Malformation as infants. Read about their journey before and after decompression surgery.
By: Leeann Fitzpatrick | 8
Rare and Complex Conditions
10 Tips for Parents of Kids with Chiari Malformation
23
Sep 2015
10 Tips for Parents of Kids with Chiari Malformation
Matthew had decompression surgery for Chiari malformation at age 4. Here, his mom offers tips on how to manage this challenging condition.
By: Merideth Rought | 21
Cancer and Blood Diseases
None of Miles’ Friends Knew He Had Cancer
23
Dec 2013
None of Miles’ Friends Knew He Had Cancer
Miles was born on August 15, 2005. We were so excited to welcome our adorable baby boy into the world. He was everything we imagined he would be and we were thrilled the day we brought him home. Just a few days after he was born we noticed a small bump on his back. I
By: Molly Brown | 5
Cancer and Blood Diseases
My Grandpa’s Letter Was A Beacon of Hope
25
Nov 2013
My Grandpa’s Letter Was A Beacon of Hope
In 2007 my grandpa was diagnosed with a malignant brain tumor. It was honestly one of the scariest times in my life. His type of cancer was sadly not curable. He went through a few surgeries and several rounds of chemo, none of which helped. One day at a get-together at my aunt’s house, my
By: Abbie Gebauer | 2
Cancer and Blood Diseases
Why 2009 Is So Difficult To Talk About
20
Nov 2013
Why 2009 Is So Difficult To Talk About
There are a lot of things that happened to my family in a very short period of time that changed our lives forever. In August of 2008, my father-in-law passed away from a brain tumor and in December of that same year, we lost everything in a house fire. It seemed as if things couldn’t
By: Karey Gebauer | 3
Cancer and Blood Diseases
Bayleigh’s Story | Why I Cherish Every Moment of Every Day
15
Nov 2013
Bayleigh’s Story | Why I Cherish Every Moment of Every Day
In August 2010 I noticed that my 16-month-old daughter, Bayleigh, was starting to fall a lot. She kept running into things and seemed really off balance. Of course, she was doing these things at the same time that she was perfecting her walking skills, so it was hard for me to know what was normal
By: Cambie Wilson | 7

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