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Rare and Complex Conditions
27
Dec 2017
A Letter to My 1-Year-Old Son, Who Had an Encephalocele
A mother pens a letter to her son, who was born with a large encephalocele. Read her account of their tumultuous year and unconditional love.
By: Valeka Riegel | 14
Patient Family Experience
Portrait of a Soul – The Healing Power of Art
18
Jun 2015
Portrait of a Soul – The Healing Power of Art
Beautiful. A picture may be worth a thousand words, but “beautiful” is the best way to describe the paintings unveiled to families for the first time at the recently opened Portrait of a Soul exhibition. Portrait of a Soul is a project commissioned by philanthropists Lee and Sue Schaefer to help boost confidence and self-esteem
By: Cincinnati Children's Social Media Team | 1
Rare and Complex Conditions
05
May 2015
Lily’s Journey with Linear Nevus Sebaceous Syndrome
Lily is a smart, active two year old and the light of my life. If you meet her, you might also notice that she has large, flesh-colored lesions on her face, head and neck. She was born with linear nevus sebaceous syndrome. In addition to the lesions, the syndrome also affects her central nervous system
By: Brandi Hall | 13

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