Tag "pulmonary atresia"

We named our daughter Alana Faith, because it sounds like “a lot of faith.” It felt appropriate given how greatly we needed to lean on it from the very beginning of her life.    A Complex Combination of Diagnoses Alana › Continue Reading

I was born with pulmonary atresia with ventricular septal defect and multiple aortopulmonary collateral arteries. To put it simple, I was born with a hole in the bottom half of my heart, no pulmonary valve, and lots of tiny arteries › Continue Reading

Our son Ryan has always been a heart warrior – that’s part of the deal when you’re diagnosed with a congenital heart defect (CHD) as a baby. But he and our family didn’t truly become heart advocates until a fateful visit › Continue Reading