Tag "sickle cell disease"

September is National Sickle Cell Awareness Month. In the United States, there are approximately 100,000 individuals living with sickle cell disease and millions of people worldwide. Our team of sickle cell experts treats nearly 300 children – providing care from › Continue Reading

Cincinnati Children’s and Calimmune Inc. have announced a license agreement to develop and commercialize a gene therapy discovered by Punam Malik, MD, the Marjory J. Johnson chair of gene and cell therapy, and director of the comprehensive sickle cell program › Continue Reading

A drug that eases some of the painful symptoms of sickle cell anemia in children might also help prevent one of the worst symptoms, stroke. As reported in MedPage Today and other news outlets, a two-year clinical trial led in › Continue Reading

Ever since I can remember, sickle cell disease has been a part of my life. Some days it was only a small part of my life and other days, like when I had a pain crisis, it was all consuming. › Continue Reading

On August 22, Cincinnati Children’s hosted the annual Sickle Cell Disease (SCD) Research and Education Day for families affected by SCD. The event featured crafts, activities, educational information, and research opportunities. “We do want to highlight research studies that are › Continue Reading

Congratulations to members of the graduating Class of 2015! Our care teams have had the pleasure of getting to know these incredible young people over the years while they have been patients at Cincinnati Children’s. On top of their dedication and hard work in › Continue Reading

If your child is born with sickle cell in the United States, chances are good (95-99%) that he or she will survive to adulthood. That is not the case for a child born with sickle cell in Uganda or other › Continue Reading

A clinical trial of hydroxyurea therapy for children with sickle cell anemia has been halted a year early by the U.S. National Heart, Lung and Blood Institute (NHLBI), because results show hydroxyurea therapy is a safe and effective way to › Continue Reading

An Avondale business is working to create awareness of Sickle Cell Anemia while raising funds for research at the same time. Stags Barber Shop and Beauty Salon held an event this week to draw attention to the blood disorder which › Continue Reading

Taking a beautiful new baby home from the hospital is a cherished experience, but for approximately 20 families in the Cincinnati area each year, a simple phone call significantly changes those first few days at home. The call comes from › Continue Reading

LeCarol Batson has a coping skill to share with other kids who have sickle cell disease: Sing it out. Since she was 6 years old and started attending summer camp for kids with cancer and blood disorders, LeCarol has looked for › Continue Reading