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Rare and Complex Conditions
A Ride For HLH Research
17
Jan 2019
A Ride For HLH Research
Our knowledge of how to diagnose and recognize HLH remains the biggest challenge when treating this condition. We have made great strides thanks to the collaboration of doctors from around the country and there is hope for HLH families.
Rare and Complex Conditions
A Message from Dr. Kumar – Learn about HLH, Become a Donor
23
Sep 2016
A Message from Dr. Kumar – Learn about HLH, Become a Donor
Dr. Kumar reflects on his participation for the third year in a row in 700 Miles to Hope, a bike ride to raise awareness about HLH.
Rare and Complex Conditions
They’re at it Again: 700 Miles to Hope for HLH
15
Sep 2015
They’re at it Again: 700 Miles to Hope for HLH
Justin Akin and 20 other cyclists set off from Natchez, MS on Saturday riding 700 miles over 7 days to raise money and awareness for HLH.
Rare and Complex Conditions
HLH: What Five Years and 700 Miles Means to Me
11
Sep 2015
HLH: What Five Years and 700 Miles Means to Me
Sam Chamberlin talks about riding in the 700 Miles to Hope bike ride in honor of his daughter Maya, who is a five-year survivor of HLH.
Rare and Complex Conditions
After HLH: William’s Story
23
Sep 2014
After HLH: William’s Story
When my husband and I made the decision to take our 3 year-old son, William, to the emergency department at Cincinnati Children’s on New Year’s Eve 2007, we had no idea how incredibly ill he was. The diagnosis of hemophagocytic lymphohistiocytosis (HLH) just a few days after he was admitted that night, completely turned our
Cancer and Blood Diseases
Three Things that Every Parent Should Know About HLH
21
Jul 2013
Three Things that Every Parent Should Know About HLH
A mom shares with parents 3 vital pieces of advice about HLH, a condition that took the lives of her two sons.
Heart Conditions
When His Heart Stopped: Lifesaving Congenital Heart Care for My Adult Son
15
May 2019
When His Heart Stopped: Lifesaving Congenital Heart Care for My Adult Son
Austin celebrates his 25th birthday in May. It’s quite a milestone, given that his heart stopped beating three years ago on a softball field. He was born with hypoplastic left heart syndrome and has had quite the journey since then.
Heart Conditions
Hypoplastic Left Heart Syndrome: A Letter to Our Son’s Heart Donor Family
14
Feb 2018
Hypoplastic Left Heart Syndrome: A Letter to Our Son’s Heart Donor Family
Eli was born with hypoplastic left heart syndrome and soon after needed a heart transplant. Read how grateful his family is to his heart donor and family.
Patient Family Experience
Patient Story Videos You Shouldn’t Miss
15
Jan 2016
Patient Story Videos You Shouldn’t Miss
Patients and families share their stories in eight not-to-be-missed videos posted over the course of 2015 on Cincinnati Children's YouTube channel.
Hospital Operations
New Year-Round Visitor Policy Helps Keep Loved Ones Safe
09
Dec 2015
New Year-Round Visitor Policy Helps Keep Loved Ones Safe
Cincinnati Children's year-round visitor policy balances the need for support from family and friends and limits exposure to germs to keep everyone safe.
Fetal Conditions
Heartpedia: An Interactive 3D App Featuring Congenital Heart Defects
11
Jul 2014
Heartpedia: An Interactive 3D App Featuring Congenital Heart Defects
The HeartPedia app is designed to help users understand congenital heart defects with interactive 3D illustrations.
Heart Conditions
Animated Videos Illustrate Congenital Heart Defects
14
Feb 2014
Animated Videos Illustrate Congenital Heart Defects
Learn more about what your child's congenital heart defect really looks like with these animated videos.
Cancer and Blood Diseases
Fathers, Survivor Bike 700 Miles in 7 Days to Defeat a Rare Immune Disease
01
Oct 2013
Fathers, Survivor Bike 700 Miles in 7 Days to Defeat a Rare Immune Disease
Claire Biagnardi is a little girl from St. Louis who likes to put on sunglasses and ham it up as she plays her toy guitar. But the 3-year-old is providing big inspiration for a group of men who are bicycling 700 miles in 7 days to raise awareness about a deadly disease called HLH. HLH
Cancer and Blood Diseases
The Road Trip of My Life
25
Apr 2013
The Road Trip of My Life
A road trip from Toronto to Sacramento by way of Calgary, Minnesota, Dayton and Cincinnati is certainly not the fastest route to take, but then, my trip wasn’t about making time, it was about taking time to honor the fight of my life and thank a selfless donor, without whom, I wouldn’t be alive to
Rare and Complex Conditions
 

26
Apr 2012
Raising awareness about immune deficiency
Ashtyn Carrier was 7 when she was diagnosed with a rare and almost unpronounceable immune-system disorder called Hemophagocytic Lymphohistiocytosis, better known as HLH. She and her family moved all the way from Minnesota so she could receive treatment at Cincinnati Children’s. She received a successful bone-marrow transplant last year and has returned home. Another immune

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