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Cancer and Blood Diseases
Reds Opening Day, Welage Family Style
07
Apr 2015
Reds Opening Day, Welage Family Style
The tradition of Opening Day is a big deal in Cincinnati. The return of baseball is treated as a holiday and Reds fans celebrate accordingly. So when one local family couldn’t make the celebration downtown yesterday, they brought the celebration to the hospital. The Welage family usually spends Opening Day out with the crowd at
By: Blog Editorial Team | 2
Cancer and Blood Diseases
Why is Sickle Cell Different in the United States Versus Uganda?
07
Jan 2015
Why is Sickle Cell Different in the United States Versus Uganda?
If your child is born with sickle cell in the United States, chances are good (95-99%) that he or she will survive to adulthood. That is not the case for a child born with sickle cell in Uganda or other African nations. Why the difference? As Dr. Russell Ware explains, it’s a matter of geography
By: Blog Editorial Team | 1
Cancer and Blood Diseases
Still Jersey Money: We’ll Make Science Count for Kids with Cancer
07
Nov 2014
Still Jersey Money: We’ll Make Science Count for Kids with Cancer
Last night, I had the privilege of helping Cincinnati Children’s President and CEO, Michael Fisher, accept a check for more than 1.3 million dollars from the Cincinnati Bengals. This charitable gift was the result of an unprecedented sale of Devon Still’s No. 75 jersey; it includes contributions from thousands of individuals around the country as
By: John Perentesis, MD | 1
Cancer and Blood Diseases
You’ve Given Our Fight a Greater Purpose
05
Nov 2014
You’ve Given Our Fight a Greater Purpose
Tomorrow evening, the Cincinnati Bengals will present a check for more than a million dollars to Cincinnati Children’s to fund new pediatric cancer research. It is the hand-off of money that was raised selling my No. 75 jerseys and the outcome of more generosity and support than I ever could have imagined for my daughter
By: Devon Still | 4
Cancer and Blood Diseases
Neuro-Oncology Team Takes Layup 4 Lauren Challenge
29
Oct 2014
Neuro-Oncology Team Takes Layup 4 Lauren Challenge
Editor’s note: if the video does not display properly for you, please follow this link. Drs. Mariko DeWire, Trent Hummel and Lionel Chow, along with the majority of Lauren Hill’s neuro-oncology team, took the Layup 4 Lauren challenge today.  The challenge, spinning around five times and shooting a layup with one’s non-dominant arm, is supposed to
By: Rachel Camper | 0
Cancer and Blood Diseases
We Need to Do Better for Patients Like Lauren Hill
29
Oct 2014
We Need to Do Better for Patients Like Lauren Hill
Lauren Hill's neuro-oncologist at Cincinnati Children's provides ways we can all contribute to the research of the fatal disease DIPG.
By: Mariko DeWire, MD | 2
Cancer and Blood Diseases
A Few Things I’ve Learned on Our Journey with Retinoblastoma
07
Oct 2014
A Few Things I’ve Learned on Our Journey with Retinoblastoma
Like many four-year-olds, my daughter recently started attending preschool. It’s an exciting milestone for any parent, but for me, it was an achievement that I wasn’t certain my daughter Khloe would attain. That’s because Khloe has bilateral retinoblastoma, which is an advanced form of cancer in both of her eyes. When children have this disease,
By: Alicia Gray | 2
Cancer and Blood Diseases
None of Miles’ Friends Knew He Had Cancer
23
Dec 2013
None of Miles’ Friends Knew He Had Cancer
Miles was born on August 15, 2005. We were so excited to welcome our adorable baby boy into the world. He was everything we imagined he would be and we were thrilled the day we brought him home. Just a few days after he was born we noticed a small bump on his back. I
By: Molly Brown | 5
Cancer and Blood Diseases
My Grandpa’s Letter Was A Beacon of Hope
25
Nov 2013
My Grandpa’s Letter Was A Beacon of Hope
In 2007 my grandpa was diagnosed with a malignant brain tumor. It was honestly one of the scariest times in my life. His type of cancer was sadly not curable. He went through a few surgeries and several rounds of chemo, none of which helped. One day at a get-together at my aunt’s house, my
By: Abbie Gebauer | 2
Cancer and Blood Diseases
Why 2009 Is So Difficult To Talk About
20
Nov 2013
Why 2009 Is So Difficult To Talk About
There are a lot of things that happened to my family in a very short period of time that changed our lives forever. In August of 2008, my father-in-law passed away from a brain tumor and in December of that same year, we lost everything in a house fire. It seemed as if things couldn’t
By: Karey Gebauer | 3
Cancer and Blood Diseases
Bayleigh’s Story | Why I Cherish Every Moment of Every Day
15
Nov 2013
Bayleigh’s Story | Why I Cherish Every Moment of Every Day
In August 2010 I noticed that my 16-month-old daughter, Bayleigh, was starting to fall a lot. She kept running into things and seemed really off balance. Of course, she was doing these things at the same time that she was perfecting her walking skills, so it was hard for me to know what was normal
By: Cambie Wilson | 7
Cancer and Blood Diseases
Fathers, Survivor Bike 700 Miles in 7 Days to Defeat a Rare Immune Disease
01
Oct 2013
Fathers, Survivor Bike 700 Miles in 7 Days to Defeat a Rare Immune Disease
Claire Biagnardi is a little girl from St. Louis who likes to put on sunglasses and ham it up as she plays her toy guitar. But the 3-year-old is providing big inspiration for a group of men who are bicycling 700 miles in 7 days to raise awareness about a deadly disease called HLH. HLH
By: Blog Editorial Team | 0
Cancer and Blood Diseases
There is No Greater Gift
19
Sep 2013
There is No Greater Gift
September is a big month in our home for a few reasons. September is Childhood Cancer Awareness Month.  As a childhood cancer family, we try to spread the word as much as possible.  We wear gold.  We paint fingernails gold.  We plaster ribbons on our vehicles.  We write letters to papers and encourage support of families
By: Katie Clayton | 0
Cancer and Blood Diseases
High School Athlete Overcomes Rare Form of Cancer: Chronic Myeloid Leukemia
06
Sep 2013
High School Athlete Overcomes Rare Form of Cancer: Chronic Myeloid Leukemia
Mother shares the story of her son's battle with Chronic Myeloid Leukemia. Read about how this high school athlete's common knee pain led to a diagnosis.
By: Nancy Young | 2
Cancer and Blood Diseases
Leaving Home
25
Jul 2013
Leaving Home
Leaving home to travel for a family member’s medical care is a difficult decision to make, but for so many of the families who choose to make a trip to Cincinnati Children’s, the right care makes the decision easier. And then it’s the leaving that becomes the hard part. Teresa’s daughter Emma has a condition
By: Kate Setter | 0
Cancer and Blood Diseases
Three Things that Every Parent Should Know About HLH
21
Jul 2013
Three Things that Every Parent Should Know About HLH
A mom shares with parents 3 vital pieces of advice about HLH, a condition that took the lives of her two sons.
By: Kristin Akin | 84
Cancer and Blood Diseases
Mom and Daughter Were Change-Agents For Family-Centered Care
20
May 2013
Mom and Daughter Were Change-Agents For Family-Centered Care
Ten years ago, on a night like any other, the mother of a patient in our pediatric intensive care unit (PICU) asked me for a sleeper chair to stay overnight with her two-year-old daughter, Katie, who had just undergone a major surgery to remove  a cancerous abdominal tumor. Anne, Katie’s mom, didn’t want to leave her daughter’s
By: Shawna Kirkendall, RN | 0
Cancer and Blood Diseases
 

01
May 2013
A Spectacular Display of Collaboration, Healing, and Artwork
Explore pictures of CCHMC Cancer & Blood Diseases Institute, inspired by a young cancer patient's love for animals & a mother's desire to make a difference.
By: Blog Editorial Team | 0
Cancer and Blood Diseases
The Road Trip of My Life
25
Apr 2013
The Road Trip of My Life
A road trip from Toronto to Sacramento by way of Calgary, Minnesota, Dayton and Cincinnati is certainly not the fastest route to take, but then, my trip wasn’t about making time, it was about taking time to honor the fight of my life and thank a selfless donor, without whom, I wouldn’t be alive to
By: Sean Feltoe | 11
Cancer and Blood Diseases
I Am A Fan
14
Mar 2013
I Am A Fan
I will admit it. I am a fan of Cincinnati Children’s. I often joke that while some people like to check the current rankings of their favorite sports teams, I wait on the edge of my seat, fingers crossed for the annual children’s hospital rankings. Odd? Yes. Strange? I know. . . but the truth.
By: Katie Clayton | 8
Cancer and Blood Diseases
Cancer Mama
18
Jan 2013
Cancer Mama
When I was young, I loved to dream of all the things I could be when I was older.  The possibilities seemed endless and my list was endless. Of all the things I thought I would ‘be’ in my life, the idea of being a ‘cancer mama’ never crossed my mind.  Like so many other
By: Katie Clayton | 29
Cancer and Blood Diseases
A Christmas Baby Named Immanuel
14
Dec 2012
A Christmas Baby Named Immanuel
Last we met the Vaughn family, they told a story of a fragile Christmas baby who was fighting for his life. When Lisa and Anthony Vaughn’s son was born on Christmas Day, 2008, they named him Immanuel. He weighed 1 pound, 15 ounces, and the Vaughns were praying for a miracle. Immanuel was premature, and
By: Tanya Leach | 0
Cancer and Blood Diseases
September is Sickle Cell Awareness Month
28
Sep 2012
September is Sickle Cell Awareness Month
Taking a beautiful new baby home from the hospital is a cherished experience, but for approximately 20 families in the Cincinnati area each year, a simple phone call significantly changes those first few days at home. The call comes from the Cincinnati Children’s Comprehensive Sickle Cell Newborn Screening program, which identifies newborn babies who have
By: Lisa Shook, DHPE, MCHES | 1
Cancer and Blood Diseases
Singing Her Way Through Sickle Cell Disease
26
Sep 2012
Singing Her Way Through Sickle Cell Disease
LeCarol Batson has a coping skill to share with other kids who have sickle cell disease: Sing it out. Since she was 6 years old and started attending summer camp for kids with cancer and blood disorders, LeCarol has looked for ways to stay positive about her condition. She is one of 100,000 people across the
By: Tanya Leach | 0
Cancer and Blood Diseases
Following Childhood Cancer Survivors as They Grow Up
19
Sep 2012
Following Childhood Cancer Survivors as They Grow Up
When he sits in the waiting area at Cincinnati Children’s, Joey Evans is usually the oldest patient in the room. At 40, Evans, a childhood cancer survivor, doesn’t mind looking like he’s old enough to be someone’s father. He already knows he fits in at Cincinnati Children’s. It’s practically where he grew up. Evans is
By: Tanya Leach | 3

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