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Heart Conditions

Heart Conditions
Born with Congenital Heart Disease: 5 Things I Wish I’d Done Differently
01
Feb 2018
Born with Congenital Heart Disease: 5 Things I Wish I’d Done Differently
Jennie was born with congenital heart disease but is now an adult. Read why she considers herself lucky in health and life and what she'd do differently.
By: Jennie Fox | 7
Heart Conditions
Pulmonary Hypertension: How We’ve Adapted to Our Daughter’s Condition
27
Nov 2017
Pulmonary Hypertension: How We’ve Adapted to Our Daughter’s Condition
Riley's mom feels fortunate that her daughter avoided the serious symptoms of pulmonary hypertension while seeking a diagnosis. Read how they've adapted
By: Kelly Wiegele | 1
Heart Conditions
Tetralogy of Fallot: Giving Thanks on Henry’s Second Anniversary
21
Nov 2017
Tetralogy of Fallot: Giving Thanks on Henry’s Second Anniversary
A mother gives thanks to the staff who shepherded her, her son, and her family through her son's tetralogy of Fallot diagnosis, surgery and beyond.
By: Laura Kohus | 1
Heart Conditions
Top 5 Things to Remember About Kawasaki Disease
08
Nov 2017
Top 5 Things to Remember About Kawasaki Disease
Kawasaki disease is the leading cause of acquired heart disease in children. While is it rare, it can easily be misdiagnosed as other more common viral illnesses. Here are 5 things parents should know about the disease.
By: Devin Tinker, MSN | 4
Heart Conditions
Adults with Congenital Heart Disease: Do You Struggle with Executive Functioning?
26
Oct 2017
Adults with Congenital Heart Disease: Do You Struggle with Executive Functioning?
If you're an adult with congenital heart disease, you are at-risk for having executive functioning issues. Answer these questions to assess your risk.
By: Christina Holbein, PhD | 1
Heart Conditions
Awareness Needed: Anomalous Aortic Origin of a Coronary Artery
12
Oct 2017
Awareness Needed: Anomalous Aortic Origin of a Coronary Artery
Anomalous aortic origin of a coronary artery is the second leading cause of sudden cardiac arrest in teens. Learn why more awareness is needed.
By: Thomas Kimball, MD | 6
Heart Conditions
Having Adult Congenital Heart Disease Hasn’t Slowed Me Down
03
Jan 2017
Having Adult Congenital Heart Disease Hasn’t Slowed Me Down
Despite being born with a heart defect, this mom of three lives a fulfilling, active life. Read why she sees an adult congenital heart disease cardiologist.
By: Holly Lawson | 0
Fetal Conditions
27
Oct 2016
Our No-Longer-Conjoined Twins’ 2nd Birthday: A Victory Celebration
No-longer-conjoined twins Selah and Shylah celebrate their second birthday. Their mom, Misty, reflects upon how far they've come.
By: Misty Oglesby | 3
Heart Conditions
What You Need To Know About Cardiomyopathy Right Now
29
Sep 2016
What You Need To Know About Cardiomyopathy Right Now
Cardiomyopathy affects nearly 30,000 children in the US. This infographic teaches symptoms to watch for to help with early detection.
By: Thomas Ryan, MD, PhD | 0
Heart Conditions
Living with Congenital Heart Disease: Are You Lost to Care?
22
Jul 2016
Living with Congenital Heart Disease: Are You Lost to Care?
Four questions to help you decide if you or a loved one are lost to care, many years after having heart problems or surgery as a young child.
By: Andrew Redington, MD | 1
Heart Conditions
Future Pregnancy After CHD Diagnosis: 3 Things To Know
02
Jun 2016
Future Pregnancy After CHD Diagnosis: 3 Things To Know
If your baby was born with congenital heart disease (CHD), you might be wondering what to do for future pregnancies. Here's what you need to know.
By: Peace Madueme, MD | 20
Heart Conditions
11
May 2016
45 Year Old Runs Marathon with Transposition of the Great Arteries
Kevin Cobb, born with transposition of the great arteries 45 years ago, ran a marathon two years following a heart transplant.
By: Kevin Cobb | 3
Heart Conditions
Getting the Green Light: Pregnancy with Adult Congenital Heart Disease
02
May 2016
Getting the Green Light: Pregnancy with Adult Congenital Heart Disease
One mother explains the process of getting the "green light" for pregnancy with adult congenital heart disease.
By: Katie Binzer | 3
Fitness and Nutrition
Fit Hearts Program Trains Cardiac Patients for Progressive Marathon
28
Apr 2016
Fit Hearts Program Trains Cardiac Patients for Progressive Marathon
Our Fit Hearts program teaches cardiac patients how to be physically active on their own by training for a progressive marathon.
By: Yvette Gerdes | 0
Heart Conditions
Henry’s Future with Tetralogy of Fallot
22
Apr 2016
Henry’s Future with Tetralogy of Fallot
Following her son's surgery for tetralogy of Fallot, Laura reflects on how quickly they went from living in the moment to looking toward the future.
By: Laura Kohus | 11
Heart Conditions
Heart to Heart: Ryan Goes to Washington, DC – Part 3
06
Mar 2016
Heart to Heart: Ryan Goes to Washington, DC – Part 3
Heart advocate Ryan Moore works to spread awareness for congenital heart defects, like the kind he was diagnosed with at birth, in hopes of finding a cure.
By: Kevin and Emilie Moore | 1
Heart Conditions
Heart to Heart: Ryan Meets Kirk Urso – Part 2
05
Mar 2016
Heart to Heart: Ryan Meets Kirk Urso – Part 2
When Ryan met Columbus Crew player Kirk Urso, he had a new friend and role model. Little did they know they were both living with congenital heart disease.
By: Kevin and Emilie Moore | 0
Heart Conditions
Heart to Heart: Ryan and Kirk’s CHD Story – Part 1
04
Mar 2016
Heart to Heart: Ryan and Kirk’s CHD Story – Part 1
Ryan continues to tell his inspiring congenital heart disease story in books, on Capitol Hill and to other CHD families in hopes of someday finding a cure.
By: Kevin and Emilie Moore | 0
Heart Conditions
New Animations: Surgical Repair of Congenital Heart Disease
29
Feb 2016
New Animations: Surgical Repair of Congenital Heart Disease
To help families better understand and describe the surgical repair for their child's congenital heart disease, we developed these animated videos.
By: Ryan Moore, MD | 1
Heart Conditions
Building Blocks of Recovery
21
Jan 2016
Building Blocks of Recovery
Sometimes normal kid things can be the best recovery tools!
By: Jennifer Dickson | 1
Heart Conditions
Adjusting to Life After A Heart Transplant
30
Sep 2015
Adjusting to Life After A Heart Transplant
Why so many follow up tests, clinic visits, and proximity limitations are necessary for preventing rejection and complications after heart transplant.
By: Shelly Stark, MSN, APRN, CNP | 1
Heart Conditions
Top Questions About Genetic Testing for Cardiomyopathy
27
Aug 2015
Top Questions About Genetic Testing for Cardiomyopathy
Find answers to the most common questions about cardiomyopathy and genetic testing.
By: Thomas Ryan, MD, PhD | 16
Heart Conditions
Sharing Asia’s Heart Transplant Story Is Like Throwing A Pebble In The Water
20
Aug 2015
Sharing Asia’s Heart Transplant Story Is Like Throwing A Pebble In The Water
Asia hopes sharing her heart transplant story will help encourage others to consider organ donation. She had a transplant as a baby and is now thriving.
By: Dawn Werner | 2
Heart Conditions
One Year Post Open-Heart Surgery, Alexander Doing Well
14
Aug 2015
One Year Post Open-Heart Surgery, Alexander Doing Well
The Marshall's video, "Waiting for Alexander" featured their son's congenital heart disease diagnosis. A year later, he is indistinguishable from his peers.
By: Rob Marshall | 0

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