Rare and Complex Conditions

Rare and Complex Conditions

What Are Disorders of the Gut-Brain Interaction?

What Are Disorders of the Gut-Brain Interaction?

The gut and brain are so intricately linked that if communication is off, it can cause minor to life-altering symptoms for kids. Read more.

By: Kahleb Graham, MD | 2

How to Choose an Alternative Milk for Kids

How to Choose an Alternative Milk for Kids

Cow’s milk provides nutrients that kids need to grow, but not all of them can drink it. Read considerations for choosing an alternative milk.

By: Meghan McNeill, MS, RD, LD | 1

Cancer and Blood Diseases

Know the Symptoms and Risk Factors of Thrombosis in Kids

Know the Symptoms and Risk Factors of Thrombosis in Kids

It's important for parents to know the symptoms and risk factors of blood clots in kids so that they can be caught and treated early.

By: Eric Mullins, MD | 0

Rare and Complex Conditions

Adapting Toys for Kids with Cerebral Palsy

Adapting Toys for Kids with Cerebral Palsy

Kids with cerebral palsy & other motor disabilities may have limited use of their hands. Learn how to adapt toys so that they can still play.

By: Bridget Baker, OTR/L | 1

Rare and Complex Conditions

Genetic Testing Finds Rare Type of Emery-Dreifuss Muscular Dystrophy

Genetic Testing Finds Rare Type of Emery-Dreifuss Muscular Dystrophy

Genetic testing found Ian's rare type of Emery-Dreifuss Muscular Dystrophy. Read how the diagnosis provided a sense of relief & path forward.

By: Jody McIlvain | 2

Food Allergy vs. Intolerance: What’s the Difference?

Food Allergy vs. Intolerance: What’s the Difference?

Food allergy and intolerance are often used interchangeably, but are actually quite different. Learn the difference and how to handle them.

By: Dr. Amal Assa’ad | 4

Fitness and Nutrition

Handy Checklist: Tips for Dining Out with Celiac Disease

Handy Checklist: Tips for Dining Out with Celiac Disease

Parents of children with celiac disease may find dining out to be a stressful experience. Read one of our dietitian's tips for making it work.

By: Abi Lepolt, RD, CSP, LD | 0

Heart Conditions

5 Reasons to Work with Child Life as an Adult with CHD

5 Reasons to Work with Child Life as an Adult with CHD

Child life isn't just for kids - they support patients and families at all ages and stages. Learn how they help adults with CHD.

By: Emily Jones, CCLS | 1

Rare and Complex Conditions

4 Surprising Facts About Celiac Disease

4 Surprising Facts About Celiac Disease

Celiac disease is a tricky condition. It is often missed or mistaken for other conditions. Learn more by reading these facts about it.

By: Abi Lepolt, RD, CSP, LD | 2

Rare and Complex Conditions

My Child Had A Seizure – Is It Epilepsy?

My Child Had A Seizure – Is It Epilepsy?

If a child has one seizure, parents often ask if it means they now have epilepsy. Read answers to this and other FAQs from an epileptologist.

By: Jeffrey Tenney, MD, PhD | 20

Cancer and Blood Diseases

Misconceptions about Von Willebrand Disease in Teen Girls

Misconceptions about Von Willebrand Disease in Teen Girls

Von Willebrand disease is the most common inherited bleeding disorder. Learn misconceptions about it to help increase awareness & diagnosis.

By: Lisa Littner, MPH, LISW | 1

Rare and Complex Conditions

4 Questions to Ask When Your Child Has Recurrent Croup

4 Questions to Ask When Your Child Has Recurrent Croup

Rule out more serious causes of your child's recurrent croup. Find out when you should see an ear, nose and throat doctor.

By: Constance Martin, MSN, CNP | 5

Heart Conditions

Former CICU Nurse Gives Back After Son’s Sudden Cardiac Arrest

Former CICU Nurse Gives Back After Son’s Sudden Cardiac Arrest

A mom explains how quick response, CPR, and an AED saved her son during sudden cardiac arrest, and why she's involved with Project ADAM.

By: Brenda Williams, RN | 2

Patient Family Experience

Your Guide to Second Opinions

Your Guide to Second Opinions

Second opinions can help if you're looking for additional insights about a diagnosis, information about another treatment option, or peace of mind as you move forward. Learn more about second opinions and how to get one.

By: Jesse Skoch, MD | 1

Heart Conditions

My Child Has High Blood Pressure, Now What?

My Child Has High Blood Pressure, Now What?

About 3.5% of kids have high blood pressure. If your child receives this diagnosis, a pediatric cardiologist explains what to expect next.

By: Sarah Henson, MD | 0

Rare and Complex Conditions

Laryngomalacia: Is My Child’s Noisy Breathing Serious?

Laryngomalacia: Is My Child’s Noisy Breathing Serious?

Laryngomalacia is the most common cause of noisy breathing in infants (stridor). Learn about other symptoms and when to see a specialist.

By: Catherine Hart, MD | 13

Rare and Complex Conditions

VEO-IBD: 6 Helpful Things We’ve Learned

VEO-IBD: 6 Helpful Things We’ve Learned

Very early onset IBD is diagnosed in kids less than 5 years old. As incidence is on the rise, a mom shares some tips to help other families.

By: Amy Marcum | 0

Tips For Hosting A Food-Allergy-Friendly Thanksgiving Meal

Tips For Hosting A Food-Allergy-Friendly Thanksgiving Meal

When you have a guest with food allergies, preparing Thanksgiving dinner can be a challenge. Find tips and recipes from one of our dietitians for hosting a food-allergy-friendly Thanksgiving meal.

By: Alison Cassin, MS, RD, LD | 2

Rare and Complex Conditions

Handy Checklist: Traveling with Crohn’s Disease, Ulcerative Colitis

Handy Checklist: Traveling with Crohn’s Disease, Ulcerative Colitis

Traveling with conditions like Crohn's disease and ulcerative colitis is possible with some up-front planning. Our handy checklist can help you prepare.

By: Renee Etter, MSN, RN, CPN | 1

Rare and Complex Conditions

3 Common Misconceptions About Palliative Care

3 Common Misconceptions About Palliative Care

Palliative care can play a valuable role for all kids with serious diagnoses, but is often misunderstood. Read 3 misconceptions about it.

By: DonnaMaria Cortezzo, MD | 0

Rare and Complex Conditions

Kids With Epilepsy More Likely to Experience Behavioral Health Difficulties

Kids With Epilepsy More Likely to Experience Behavioral Health Difficulties

Kids with epilepsy are more likely to have psychological challenges, like emotion, behavior, learning or development issues. Read why and what can be done.

By: Lisa Clifford, PhD | 1

6 Questions to Ask When Your Child Complains of Chest Pain

Has your child complained of chest pain? Ask yourself these 6 questions to determine if it is a serious concern.

By: Adam Powell, MD | 819

Rare and Complex Conditions

Hepatitis of Unknown Origin in Kids: What Do We Know?

Hepatitis of Unknown Origin in Kids: What Do We Know?

Hepatitis in kids has been in the news recently, in particular a specific type called hepatitis of unknown origin. Learn from two of our experts who discuss what’s causing this condition, and what you need to be on the lookout for in your child.

By: Lara Danziger-Isakov, MD | 0

Cancer and Blood Diseases

Child Life’s Role in Proton Therapy

Child Life’s Role in Proton Therapy

Child Life specialists play an important role in helping our patients through proton therapy, a radiation treatment that minimizes damage to areas surrounding tumors.

By: Carley Larkin | 4

Child Development and Behavior

Preparing for Guardianship of a Child with Medically Complex Needs

Preparing for Guardianship of a Child with Medically Complex Needs

For parents of kids with medically complex needs, it's important to think about their care after they turn 18. One of our social workers put together this handy checklist to help parents. It includes items to take care of and questions to ask as your child grows.

By: Meredith Bohache | 0

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