Rare and Complex Conditions

Despite doing everything “right,” in my pregnancies, I delivered both of my girls prematurely. I avoided unhealthy environmental factors.  I went to prenatal appointments. I took my vitamins. Ate a well-balanced diet.  So why was my first daughter born almost › Continue Reading

Ten years ago, on a night like any other, the mother of a patient in our pediatric intensive care unit (PICU) asked me for a sleeper chair to stay overnight with her two-year-old daughter, Katie, who had just undergone a › Continue Reading

When Alex Jofriet was nine years old, his weight dropped to 50 pounds. At first his parents thought he was simply a picky eater, but he was sick and in pain all of the time. Doctors ultimately diagnosed him with › Continue Reading

The recently renovated outpatient centers of the Cancer and Blood Diseases Institute (CBDI) are a spectacular sight.  The beautiful lighting, bright colors, clean lines, and artwork. But what’s even more spectacular is the thought and planning behind its creation. It › Continue Reading

A road trip from Toronto to Sacramento by way of Calgary, Minnesota, Dayton and Cincinnati is certainly not the fastest route to take, but then, my trip wasn’t about making time, it was about taking time to honor the fight › Continue Reading

The photo above is of my son, Hector, wearing a Mehta Cast, the non-invasive corrective treatment that our family chose for Hector when he was diagnosed with idiopathic infantile scoliosis. You may be wondering why we would CHOOSE such a › Continue Reading

My son, Jordan (pictured top left), is a typical teenager: he has a messy room, forgets to take out the trash and acts silly. But he is also very loving, honest, and extremely athletic. At four, Jordan started playing basketball › Continue Reading

The functionality of an AED (Automated External Defibrillator) is complex.  It evaluates the heart rhythm and delivers an electric shock to the heart when it unexpectedly stops. It’s no wonder that an American Heart Association study revealed that only 15 › Continue Reading

It’s a story that we hear too often:  a student athlete shoots a game-winning shot and collapses during the celebration.  In many cases the underlying cause of that fatal collapse is sudden cardiac arrest (SCA) caused by an undiagnosed form › Continue Reading

I Am A Fan

I will admit it. I am a fan of Cincinnati Children’s. I often joke that while some people like to check the current rankings of their favorite sports teams, I wait on the edge of my seat, fingers crossed for › Continue Reading

Cancer Mama

When I was young, I loved to dream of all the things I could be when I was older.  The possibilities seemed endless and my list was endless. Of all the things I thought I would ‘be’ in my life, › Continue Reading

“I’m active.  I feel better.  I’m happy to be alive.”  These are words from Misty Barnhart, a patient of the Tuberous Sclerosis Clinic at Cincinnati Children’s. Before coming to Cincinnati Children’s, Misty had one of her kidneys removed after a procedure › Continue Reading

This month we are sharing reader-submitted stories that reveal the true spirit of the holiday season. This is Hannah’s story as told by her mom, Libby. Every day when I look into the eyes of my happy, healthy six-year-old daughter Hannah, I › Continue Reading

My name is Ashleigh Baker and I have been a Cincinnati Children’s patient my whole life. I was born with a unilateral cleft lip and palate and I have been patiently waiting my tenth surgery which is finally tomorrow! As › Continue Reading

Last we met the Vaughn family, they told a story of a fragile Christmas baby who was fighting for his life. When Lisa and Anthony Vaughn’s son was born on Christmas Day, 2008, they named him Immanuel. He weighed 1 › Continue Reading

Seven-year-old Lydia Butler’s medical journey began when she was five days old and her parents found out she had a heart murmur. Tests showed she had tricuspid atresia, a defect that blocked the blood flow from her heart to her › Continue Reading

When Cincinnati Children’s first told Erin Grasty’s patient story two years ago, she was a 16-year-old patient with epilepsy. She had been having seizures since she was 10. Erin and her mom, Patty, talked about what it was like to › Continue Reading

This morning, Jason Williams of Peebles, OH, joined his doctors in a room full of news media representatives as they described the first-of-its-kind surgery that Jason agreed to at the beginning of September. He says it was as much for other Duchenne muscular dystrophy › Continue Reading

Doctors at Cincinnati Children’s Hospital Medical Center held a press conference today to discuss the first surgery in the nation involving the implantation of a heart device in a patient living with Duchenne muscular dystrophy (DMD). DMD is a genetic › Continue Reading

in the middle

Tonight when I went to kiss my Asher at bedtime, he stopped me and said, No. Your nose. I want to kiss your nose. So I moved my nose closer and his little five year old lips found their way › Continue Reading

“Who are you walking for this year?” It’s a question you’ll hear asked frequently as we countdown to the 7th annual Cincinnati Walks for Kids on Saturday, Oct. 20 at Coney Island. As the walk coordinator, I get to hear › Continue Reading

Taking a beautiful new baby home from the hospital is a cherished experience, but for approximately 20 families in the Cincinnati area each year, a simple phone call significantly changes those first few days at home. The call comes from › Continue Reading

LeCarol Batson has a coping skill to share with other kids who have sickle cell disease: Sing it out. Since she was 6 years old and started attending summer camp for kids with cancer and blood disorders, LeCarol has looked for › Continue Reading

When he sits in the waiting area at Cincinnati Children’s, Joey Evans is usually the oldest patient in the room. At 40, Evans, a childhood cancer survivor, doesn’t mind looking like he’s old enough to be someone’s father. He already › Continue Reading

Maria Seta Kirkland says she has a soft spot for bald heads and chubby cheeks. She is a childhood cancer survivor and once had a bald head and chubby cheeks herself. She always wants to tell people she loves them. › Continue Reading