Tag: "tetralogy of fallot"
A Lot of Faith Needed: Tetralogy of Fallot, Chromosomal Disorder Diagnoses
Alana was born with a complex combination of conditions, including tetralogy of Fallot (TOF), pulmonary atresia, and major aortopulmonary collateral artery. Read why her parents needed a lot of faith and the right specialists to treat her complicated heart condition.
Tetralogy of Fallot: When The Words “Thank You” Aren’t Enough
A mother describes how the words "thank you" really aren't enough for relaying the gratitude she feels towards her son's heart surgeon, who repaired his tetralogy of Fallot. "Every night, when I tuck my son in to bed, I rest my hand on his chest, a ritual of gratitude as his heart gently beats underneath my palm."
He Said Yes: Our Whirlwind Wedding Before My Heart Failure Procedure
Not many people get married four days after a proposal. But for Shannon, being married was the one thing she thought would comfort her as she headed into a high-risk procedure for heart failure, or severe right ventricular dysfunction. Read all about their big day.
A Mother’s Perspective: Finding the Right Pediatric Cardiologist
Read why this heart mom hasn't stopped worrying about her son's heart, 20 years later, and why it is important to find the right pediatric cardiologist.
Tetralogy of Fallot: Giving Thanks on Henry’s Second Anniversary
A mother gives thanks to the staff who shepherded her, her son, and her family through her son's tetralogy of Fallot diagnosis, surgery and beyond.
Mom grateful that Jimmy Kimmel is raising awareness of infant heart conditions
Tetralogy of Fallot is a congenital heart condition that occurs in about 1 in 2,000 newborns. It’s a rare disease characterized by a set of four physical defects that prevent
Having Adult Congenital Heart Disease Hasn’t Slowed Me Down
Despite being born with a heart defect, this mom of three lives a fulfilling, active life. Read why she sees an adult congenital heart disease cardiologist.
Henry’s Future with Tetralogy of Fallot
Following her son's surgery for tetralogy of Fallot, Laura reflects on how quickly they went from living in the moment to looking toward the future.
Building Blocks of Recovery
Sometimes normal kid things can be the best recovery tools!
The Day Doctors Removed My Son’s PICC Line
My son, James Dickson, was born with tetralogy of Fallot, a congenital heart condition comprised of four heart defects which cause oxygen-poor blood to flow from the heart to the
Growing Up in Heartland
You have probably never heard my son’s name, Max Page, but you might recognize him. He was the mini Darth Vader in the 2011 Volkswagen Super Bowl commercial. Soon after