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Rare and Complex Conditions

Heart Conditions
11
May 2016
45 Year Old Runs Marathon with Transposition of the Great Arteries
Kevin Cobb, born with transposition of the great arteries 45 years ago, ran a marathon two years following a heart transplant.
By: Kevin Cobb | 3
Rare and Complex Conditions
Boy with Cerebral Palsy Receives Modified “Ferrari”
10
May 2016
Boy with Cerebral Palsy Receives Modified “Ferrari”
A group of Seven Hills Middle School students modified a toy "ferrari" for a boy with cerebral palsy, so that he could play with his older brothers.
By: Cincinnati Children's Social Media Team | 0
Heart Conditions
Getting the Green Light: Pregnancy with Adult Congenital Heart Disease
02
May 2016
Getting the Green Light: Pregnancy with Adult Congenital Heart Disease
One mother explains the process of getting the "green light" for pregnancy with adult congenital heart disease.
By: Katie Binzer | 3
Fitness and Nutrition
Fit Hearts Program Trains Cardiac Patients for Progressive Marathon
28
Apr 2016
Fit Hearts Program Trains Cardiac Patients for Progressive Marathon
Our Fit Hearts program teaches cardiac patients how to be physically active on their own by training for a progressive marathon.
By: Yvette Gerdes | 0
Rare and Complex Conditions
A Promising Early Research Study for IBD Treatment
28
Apr 2016
A Promising Early Research Study for IBD Treatment
Dr. Denson is hopeful that an early IBD research study, which is looking at ways to influence the microbiome, has the potential to be an IBD treatment.
By: Lee A. Denson, MD | 0
Heart Conditions
Henry’s Future with Tetralogy of Fallot
22
Apr 2016
Henry’s Future with Tetralogy of Fallot
Following her son's surgery for tetralogy of Fallot, Laura reflects on how quickly they went from living in the moment to looking toward the future.
By: Laura Kohus | 11
Rare and Complex Conditions
Running to Raise Awareness for Bartter Syndrome
21
Apr 2016
Running to Raise Awareness for Bartter Syndrome
Ian's support system -- his friends, family and even his doctor -- ran with him in a stroller during a marathon to raise awareness for Bartter syndrome.
By: Amanda Wesolowski | 1
Rare and Complex Conditions
Sacral Nerve Stimulation in Kids: New Therapy Shows Promise
07
Apr 2016
Sacral Nerve Stimulation in Kids: New Therapy Shows Promise
Dr. Jason Frischer talks about offering sacral nerve stimulation (SNS) to kids as a treatment for fecal incontinence.
By: Jason S. Frischer, MD | 0
Cancer and Blood Diseases
3 Facts About Fertility in Kids with Cancer and Blood Diseases
06
Apr 2016
3 Facts About Fertility in Kids with Cancer and Blood Diseases
Some cancer and blood disease treatments are more damaging to fertility than others. Here's what parents need to know about fertility in kids with cancer.
By: Karen Burns, MD | 0
Rare and Complex Conditions
Stomach Pain and Acute Pancreatitis: Questions To Ask Your Child’s Doctor
31
Mar 2016
Stomach Pain and Acute Pancreatitis: Questions To Ask Your Child’s Doctor
Questions to ask your child's doctor to help determine if your child's stomach pain is acute pancreatitis.
By: Maisam Abu-El-Haija, MD | 3
Rare and Complex Conditions
Review of Epilepsy and Seizure Tracking Apps
29
Mar 2016
Review of Epilepsy and Seizure Tracking Apps
A comprehensive review of three epilepsy and seizure tracking applications by researchers in our Center for Adherence and Self Management.
By: Avani Modi, PhD | 0
Rare and Complex Conditions
7 Things Parents Need To Know About Nephrotoxic Medications
10
Mar 2016
7 Things Parents Need To Know About Nephrotoxic Medications
Through research we've learned important info in the last 10 years about the effects of nephrotoxic medications on the kidneys.
By: Stuart Goldstein, MD | 2
Heart Conditions
Heart to Heart: Ryan Goes to Washington, DC – Part 3
06
Mar 2016
Heart to Heart: Ryan Goes to Washington, DC – Part 3
Heart advocate Ryan Moore works to spread awareness for congenital heart defects, like the kind he was diagnosed with at birth, in hopes of finding a cure.
By: Kevin and Emilie Moore | 1
Heart Conditions
Heart to Heart: Ryan Meets Kirk Urso – Part 2
05
Mar 2016
Heart to Heart: Ryan Meets Kirk Urso – Part 2
When Ryan met Columbus Crew player Kirk Urso, he had a new friend and role model. Little did they know they were both living with congenital heart disease.
By: Kevin and Emilie Moore | 0
Heart Conditions
Heart to Heart: Ryan and Kirk’s CHD Story – Part 1
04
Mar 2016
Heart to Heart: Ryan and Kirk’s CHD Story – Part 1
Ryan continues to tell his inspiring congenital heart disease story in books, on Capitol Hill and to other CHD families in hopes of someday finding a cure.
By: Kevin and Emilie Moore | 0
Heart Conditions
New Animations: Surgical Repair of Congenital Heart Disease
29
Feb 2016
New Animations: Surgical Repair of Congenital Heart Disease
To help families better understand and describe the surgical repair for their child's congenital heart disease, we developed these animated videos.
By: Ryan Moore, MD | 1
Patient Family Experience
Receiving Your Child’s Diagnosis: What to Do Next
18
Feb 2016
Receiving Your Child’s Diagnosis: What to Do Next
Parents often feel helpless following a definitive diagnosis for their child. One of our social workers offers potential next steps to take.
By: Suzan DeCicca, LSW | 0
Rare and Complex Conditions
Laryngomalacia: Is My Child’s Noisy Breathing Serious?
11
Feb 2016
Laryngomalacia: Is My Child’s Noisy Breathing Serious?
Laryngomalacia is the most common cause of noisy breathing in infants (stridor). Learn about other symptoms to watch for and when to see a specialist.
By: Catherine Hart, MD | 9
Patient Family Experience
IBD: 3 Lessons from an Experienced Parent
22
Jan 2016
IBD: 3 Lessons from an Experienced Parent
A mom reflects on her child's experiences with IBD and Crohn's disease, now that he has graduated college and is heading out on his own.
By: Linda Weaver | 11
Heart Conditions
Building Blocks of Recovery
21
Jan 2016
Building Blocks of Recovery
Sometimes normal kid things can be the best recovery tools!
By: Jennifer Dickson | 1
Food Allergies
Allergy Friendly Cookies: Milk, Egg and Wheat Free
21
Dec 2015
Allergy Friendly Cookies: Milk, Egg and Wheat Free
Make allergy friendly cookies this year with a recipe that is milk-free, wheat-free and egg-free.
By: Kara Kliewer, PhD, RD | 0
Rare and Complex Conditions
Isovaleric Acidemia: Micah’s Metabolic Journey
18
Dec 2015
Isovaleric Acidemia: Micah’s Metabolic Journey
When he was just a few days old, Micah was diagnosed with Isovaleric Acidemia. His mom shares the story of those scary first days and how far he's come.
By: Lisa Hensley | 0
Food Allergies
 

13
Dec 2015
Allergy-Friendly Recipe: Berry Muffins
Our dietitians put together holiday recipes that exclude six of the most common food allergens.  (Recipe courtesy of Raquel Durban). Ingredients 2 cups gluten free flour 3 frozen bananas 1 cup frozen berries 3/4 cup sugar 1/2 cup applesauce 2 tablespoons of chia seeds mixed with 6 tablespoons of water 1 teaspoon baking soda Preparations
By: Carina Venter, PhD, RD | 0
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Creamy Pasta Sauce
Our dietitians put together holiday recipes that exclude the six most common food allergens. Recipe courtesy of Bethany Doerfler. Ingredients(serves 4) 1 can white kidney (cannelloni) beans 2-3 Tbsp olive oil 3-4 plum tomatoes (diced) ½ cup black or Kalamata olives 6-8 fresh basil leaves 1 small onion (diced) 1 clove garlic ½ cup gluten
By: Carina Venter, PhD, RD | 0
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Healthy Lazy Soup
Our dietitians pulled together holiday recipes that exclude six of the most common food allergens. This is a great one for when you don’t feel like cooking. Recipe courtesy of Bethany Doerfler. Ingredients (serves 4) 6-8 cups Gluten Free chicken broth 1 pound boneless skinless chicken breast 4-5 carrots 4-5 celery stalks 1 medium onion 2
By: Carina Venter, PhD, RD | 3

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