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Rare and Complex Conditions

Fetal Conditions
27
Oct 2016
Our No-Longer-Conjoined Twins’ 2nd Birthday: A Victory Celebration
No-longer-conjoined twins Selah and Shylah celebrate their second birthday. Their mom, Misty, reflects upon how far they've come.
By: Misty Oglesby | 3
Cancer and Blood Diseases
How to Help a Family of a Child With Cancer
30
Sep 2016
How to Help a Family of a Child With Cancer
Practical suggestions for helping and talking to a family of a child with cancer.
By: Sarah Quinn | 2
Heart Conditions
What You Need To Know About Cardiomyopathy Right Now
29
Sep 2016
What You Need To Know About Cardiomyopathy Right Now
Cardiomyopathy affects nearly 30,000 children in the US. This infographic teaches symptoms to watch for to help with early detection.
By: Thomas Ryan, MD, PhD | 0
Rare and Complex Conditions
A Message from Dr. Kumar – Learn about HLH, Become a Donor
23
Sep 2016
A Message from Dr. Kumar – Learn about HLH, Become a Donor
Dr. Kumar reflects on his participation for the third year in a row in 700 Miles to Hope, a bike ride to raise awareness about HLH.
By: Ashish Kumar, MD, PhD | 4
Fitness and Nutrition
5 Tips for Packing a Well-Rounded Nut-Free Lunch
23
Sep 2016
5 Tips for Packing a Well-Rounded Nut-Free Lunch
Helpful tips for packing a well-rounded and nut-free lunch, from one of our dietitians.
By: Alison Cassin, MS, RD, LD | 0
Rare and Complex Conditions
Understanding Different Seizure Symptoms
15
Sep 2016
Understanding Different Seizure Symptoms
Not all seizures have the same set of symptoms. Learn more about different types of seizure symptoms and warning signs.
By: Jeffrey Tenney, MD, PhD | 2
Cancer and Blood Diseases
13
Sep 2016
Life After Battling PNET Brain Tumor
Mitch Stone, a boy who survived a PNET brain tumor and was adopted by the University of Cincinnati football team in 2009, starts college at UC.
By: Mitch Stone | 0
Rare and Complex Conditions
From Liver Transplant to ‘Little Ball of Energy’
12
Aug 2016
From Liver Transplant to ‘Little Ball of Energy’
Allison has defied all of the odds following a biliary atresia diagnosis and a liver transplant. She has earned the nickname "little ball of energy".
By: Jen Herr | 2
Cancer and Blood Diseases
06
Aug 2016
Proton Therapy: A Game Changer in Cancer Treatment
Dr. Perentesis explains why proton therapy is a game changer in cancer treatment: reduced side effects and secondary cancers; improved long-term outcomes.
By: John Perentesis, MD | 0
Rare and Complex Conditions
Pectus Excavatum: The Student Becomes the Teacher
05
Aug 2016
Pectus Excavatum: The Student Becomes the Teacher
A medical student with pectus excavatum shares his experience as Dr. Garcia's patient and how he influenced his decision to become a doctor.
By: Nick Beecroft | 2
Heart Conditions
Living with Congenital Heart Disease: Are You Lost to Care?
22
Jul 2016
Living with Congenital Heart Disease: Are You Lost to Care?
Four questions to help you decide if you or a loved one are lost to care, many years after having heart problems or surgery as a young child.
By: Andrew Redington, MD | 1
Fitness and Nutrition
Allergy-Friendly On-The-Go Snacks
12
Jul 2016
Allergy-Friendly On-The-Go Snacks
Ideas for allergy-friendly on-the-go snacks, which avoid the six most common allergens.
By: Carina Venter, PhD, RD | 0
Rare and Complex Conditions
IBD: Tips for Managing Steroid Side Effects
08
Jul 2016
IBD: Tips for Managing Steroid Side Effects
When your child has IBD, steroids are often used as a first line of defense. Here are a few tips for managing steroid side effects.
By: Phillip Minar, MD | 0
Rare and Complex Conditions
Hematuria in Kids: What Does it Mean?
15
Jun 2016
Hematuria in Kids: What Does it Mean?
Learn more about what causes blood in the urine (hematuria) and when your child should see a doctor.
By: Beth Jackson, MD | 10
Heart Conditions
Future Pregnancy After CHD Diagnosis: 3 Things To Know
02
Jun 2016
Future Pregnancy After CHD Diagnosis: 3 Things To Know
If your baby was born with congenital heart disease (CHD), you might be wondering what to do for future pregnancies. Here's what you need to know.
By: Peace Madueme, MD | 20
Fetal Conditions
Myelomeningocele Surgery: Our Biggest and Hardest Decision
18
May 2016
Myelomeningocele Surgery: Our Biggest and Hardest Decision
Choosing open fetal heart surgery for myelomeningocele, during pregnancy with our daughter, was the biggest and hardest decision we have ever made.
By: Dayna Sargent | 6
Rare and Complex Conditions
Samantha’s Adventures With New Lungs
17
May 2016
Samantha’s Adventures With New Lungs
Since Sam's life-saving double lung transplant for cystic fibrosis, she's enjoyed life with new lungs and kept the memory of her donor close to her heart.
By: Samantha Boling | 2
Fitness and Nutrition
Learning to Eat: The Importance of Texture and Food Variety
13
May 2016
Learning to Eat: The Importance of Texture and Food Variety
When you're ready to start introducing your baby to solid foods, use this guide to determine the appropriate textures, portion size and frequency based on the age of your child.
By: Carina Venter, PhD, RD | 1
Heart Conditions
11
May 2016
45 Year Old Runs Marathon with Transposition of the Great Arteries
Kevin Cobb, born with transposition of the great arteries 45 years ago, ran a marathon two years following a heart transplant.
By: Kevin Cobb | 3
Rare and Complex Conditions
Boy with Cerebral Palsy Receives Modified “Ferrari”
10
May 2016
Boy with Cerebral Palsy Receives Modified “Ferrari”
A group of Seven Hills Middle School students modified a toy "ferrari" for a boy with cerebral palsy, so that he could play with his older brothers.
By: Blog Editorial Team | 0
Heart Conditions
Getting the Green Light: Pregnancy with Adult Congenital Heart Disease
02
May 2016
Getting the Green Light: Pregnancy with Adult Congenital Heart Disease
One mother explains the process of getting the "green light" for pregnancy with adult congenital heart disease.
By: Katie Binzer | 3
Fitness and Nutrition
Fit Hearts Program Trains Cardiac Patients for Progressive Marathon
28
Apr 2016
Fit Hearts Program Trains Cardiac Patients for Progressive Marathon
Our Fit Hearts program teaches cardiac patients how to be physically active on their own by training for a progressive marathon.
By: Yvette Gerdes | 0
Rare and Complex Conditions
A Promising Early Research Study for IBD Treatment
28
Apr 2016
A Promising Early Research Study for IBD Treatment
Dr. Denson is hopeful that an early IBD research study, which is looking at ways to influence the microbiome, has the potential to be an IBD treatment.
By: Lee A. Denson, MD | 0
Heart Conditions
Henry’s Future with Tetralogy of Fallot
22
Apr 2016
Henry’s Future with Tetralogy of Fallot
Following her son's surgery for tetralogy of Fallot, Laura reflects on how quickly they went from living in the moment to looking toward the future.
By: Laura Kohus | 11

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