Tag "patient stories"

2-year-old Parker Loudermilk is fighting Alveolar Rhabdomyosarcoma, a cancer that aggressively attacks soft tissues. Loudermilk and his family find strength and support in videos of people singing “Fight Song.” Learn more on WCPO.com and WLWT.com.

A torch made its way through Cincinnati Children’s in honor of the Transplant Games of America taking place in Cleveland. Transplant patients carried the torch throughout the hospital while families and members of Cincinnati Children’s transplant team cheered them on. › Continue Reading

Daphne Nieves recently received a life-saving bone marrow transplant on her tenth birthday. The donor is a perfect match with the same blood type, so Daphne’s mother is hopeful. Many people sent cards and gifts to Daphne, and nurses sang › Continue Reading

Nicole Stouts struggled her entire life with a variety of chronic symptoms without a diagnosis. She recently received genetic testing at Cincinnati Children’s and was diagnosed with Ehlers Danlos syndrome (EDS), a connective tissue disorder. Stouts now sees a multidisciplinary team › Continue Reading

China Kinebrew, six years-old, was shot on July 5, 2015, near her home in Avondale. She was taken to Cincinnati Children’s Emergency Department where more than 20 medical staff participated in her care. Richard Falcone, MD, MPH, director, Trauma Services, › Continue Reading

Jodie Walter was born with hypoplastic left heart syndrome and was a patient of Tom Kimball, MD, at Cincinnati Children’s for her entire childhood. Kimball doesn’t treat Jodie anymore, but she still inspires him. “To see Jodie grow from this › Continue Reading

Jordan and Hillary Weidner’s daughter, Bea, was diagnosed at two months old with biliary atresia, a condition affecting the bile ducts of the liver. Bea required a liver transplant, and her mother Hillary was a match. Bea’s parents decided to › Continue Reading

16-month-old Iyana Davis is battling a rare brain cancer that has spread to her spinal cord. Iyana’s parents, Beatrice Thomas and Isaac Davis, are hoping to raise enough money with the help of the community to buy a van to › Continue Reading

Danielle Jones, Senior Media Relations Associate, and her husband Chris recently shared their story  of losing their-10-day old son in hopes of shedding light on Pregnancy and Infant Loss Awareness Month. Danielle and Chris talked about how to help others › Continue Reading

On Sunday, Sept. 27, the first March for Gold event took place to support children fighting cancer. The 2 mile walk and balloon release was started in honor of Taylor Grant, a 4-year-old battling neuroblastoma at Cincinnati Children’s. Read more › Continue Reading

25-year-old patient Travale King recently received his second life-saving heart transplant at Cincinnati Children’s. Prior to his transplant, doctors gave King a total artificial heart known as a Syncardia to keep him alive until another heart became available. King’s health › Continue Reading

The town of Warsaw, Kentucky, came together to wish 5-year-old Adelyn Kluemper good luck as she left for Cincinnati Children’s for heart surgery. Adelyn has had 5 surgeries including one on her kidney, one on her colon, and three on › Continue Reading

After a stint at Cincinnati Children’s earlier this year, nine-year-old Anna noticed an opportunity to improve other kids’ visits to the hospital. And – thanks to the generosity of the online community – she’s collected toys, games and gift cards › Continue Reading

Avi Newhouse, 12, is in remission for cancer, but his weakened immune system makes commercial travel impossible. He needed help getting from his home in New York to Cincinnati Children’s for treatment. Thanks to the Corporate Angel Network and Procter › Continue Reading

Lauren Hill, the 19-year-old Mount St. Joseph basketball player diagnosed with diffuse intrinsic pontine glioma and treated at Cincinnati Children’s, died on Friday, April 10. The Cincinnati Enquirer collected a number of tributes to her. See the tributes at Cincinnati.com, › Continue Reading

Layla and Angel Martin – sisters ages four and three – have infantile neuroaxonal dystrophy (INAD), an extremely rare disorder which affects the nervous system. There is no cure for INAD. Doctors at Cincinnati Children’s spent more than a year attempting to › Continue Reading

Cancer is the number one killer of children. About 10,000 children will be diagnosed this year. But only about 4 percent of the $4.79 billion federal cancer research budget goes to pediatric illness. As a result, more moms and dads › Continue Reading

Reef Carneson, 6, and his family have traveled from California to Cincinnati to be treated at Cincinnati Children’s for  graft-versus-host disease (GVHD), a rare cancer. Ryan Carneson, Reef’s father, spoke of his son’s medical team at Cincinnati Children’s: “We’re able › Continue Reading

Dr. Rob Hopkin, a geneticist at Cincinnati Children’s, talked with Fox 19 WXIX about the rarity of a set of identical triplet boys, especially in regard to their good health. The rarity of identical triplets ranges from one in 60,000 to › Continue Reading

Austin’s 5K

Through my work as a physical therapist, I have had the privilege of meeting a young man named Austin. Austin is 17 years old and lives in Batavia. He has been a Cincinnati Children’s patient for many years. Images of › Continue Reading

When Cincinnati Children’s diagnosed Becky Kremer’s sons with ATRX, a rare genetic disorder, she became passionate about not only helping her own family deal with the medical and developmental effects of the disease but also advocating for other children with › Continue Reading

Alexis Shapiro, a Cibolo, Texas, pre-teen who had a gastric sleeve procedure at Cincinnati Children’s Hospital Medical Center to correct a rare weight disorder, is doing even better than doctors expected and has lost 37 pounds since her operation. “She › Continue Reading

After her son, Liam, died at 20 months of age from the rare immunodeficiency disease called hemophagocytic lymphohistiocytosis (HLH), Michelle Slezak Schulze began Liam’s Lighthouse Foundation to support those diagnosed with the disease. When Liam reached four months of age, › Continue Reading

Amy Robillard came in first place for the women’s division in the 2014 Flying Pig Marathon and is part of a family that has been positively affected by the work of the Cincinnati Children’s team. Robillard’s family moved to Cincinnati › Continue Reading

Meet Spencer. He is a super smart, always energetic 6 year old boy with a big personality. He, along with six other Cincinnati Children’s patients, recently participated in a photo shoot to capture the images for our new advertising campaign that › Continue Reading