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Rare and Complex Conditions

Rare and Complex Conditions
Running to Raise Awareness for Bartter Syndrome
21
Apr 2016
Running to Raise Awareness for Bartter Syndrome
Ian's support system -- his friends, family and even his doctor -- ran with him in a stroller during a marathon to raise awareness for Bartter syndrome.
By: Amanda Wesolowski | 1
Rare and Complex Conditions
Sacral Nerve Stimulation in Kids: New Therapy Shows Promise
07
Apr 2016
Sacral Nerve Stimulation in Kids: New Therapy Shows Promise
Dr. Jason Frischer talks about offering sacral nerve stimulation (SNS) to kids as a treatment for fecal incontinence.
By: Jason S. Frischer, MD | 0
Cancer and Blood Diseases
3 Facts About Fertility in Kids with Cancer and Blood Diseases
06
Apr 2016
3 Facts About Fertility in Kids with Cancer and Blood Diseases
Some cancer and blood disease treatments are more damaging to fertility than others. Here's what parents need to know about fertility in kids with cancer.
By: Karen Burns, MD | 0
Rare and Complex Conditions
Stomach Pain and Acute Pancreatitis: Questions To Ask Your Child’s Doctor
31
Mar 2016
Stomach Pain and Acute Pancreatitis: Questions To Ask Your Child’s Doctor
Questions to ask your child's doctor to help determine if your child's stomach pain is acute pancreatitis.
By: Maisam Abu-El-Haija, MD | 3
Rare and Complex Conditions
Review of Epilepsy and Seizure Tracking Apps
29
Mar 2016
Review of Epilepsy and Seizure Tracking Apps
A comprehensive review of three epilepsy and seizure tracking applications by researchers in our Center for Adherence and Self Management.
By: Avani Modi, PhD | 0
Rare and Complex Conditions
7 Things Parents Need To Know About Nephrotoxic Medications
10
Mar 2016
7 Things Parents Need To Know About Nephrotoxic Medications
Through research we've learned important info in the last 10 years about the effects of nephrotoxic medications on the kidneys.
By: Stuart Goldstein, MD | 2
Heart Conditions
Heart to Heart: Ryan Goes to Washington, DC – Part 3
06
Mar 2016
Heart to Heart: Ryan Goes to Washington, DC – Part 3
Heart advocate Ryan Moore works to spread awareness for congenital heart defects, like the kind he was diagnosed with at birth, in hopes of finding a cure.
By: Kevin and Emilie Moore | 1
Heart Conditions
Heart to Heart: Ryan Meets Kirk Urso – Part 2
05
Mar 2016
Heart to Heart: Ryan Meets Kirk Urso – Part 2
When Ryan met Columbus Crew player Kirk Urso, he had a new friend and role model. Little did they know they were both living with congenital heart disease.
By: Kevin and Emilie Moore | 0
Heart Conditions
Heart to Heart: Ryan and Kirk’s CHD Story – Part 1
04
Mar 2016
Heart to Heart: Ryan and Kirk’s CHD Story – Part 1
Ryan continues to tell his inspiring congenital heart disease story in books, on Capitol Hill and to other CHD families in hopes of someday finding a cure.
By: Kevin and Emilie Moore | 0
Heart Conditions
New Animations: Surgical Repair of Congenital Heart Disease
29
Feb 2016
New Animations: Surgical Repair of Congenital Heart Disease
To help families better understand and describe the surgical repair for their child's congenital heart disease, we developed these animated videos.
By: Ryan Moore, MD | 1
Patient Family Experience
Receiving Your Child’s Diagnosis: What to Do Next
18
Feb 2016
Receiving Your Child’s Diagnosis: What to Do Next
Parents often feel helpless following a definitive diagnosis for their child. One of our social workers offers potential next steps to take.
By: Suzan DeCicca, LSW | 0
Patient Family Experience
IBD: 3 Lessons from an Experienced Parent
22
Jan 2016
IBD: 3 Lessons from an Experienced Parent
A mom reflects on her child's experiences with IBD and Crohn's disease, now that he has graduated college and is heading out on his own.
By: Linda Weaver | 11
Heart Conditions
Building Blocks of Recovery
21
Jan 2016
Building Blocks of Recovery
Sometimes normal kid things can be the best recovery tools!
By: Jennifer Dickson | 1
Food Allergies
Allergy Friendly Cookies: Milk, Egg and Wheat Free
21
Dec 2015
Allergy Friendly Cookies: Milk, Egg and Wheat Free
Make allergy friendly cookies this year with a recipe that is milk-free, wheat-free and egg-free.
By: Kara Kliewer, PhD, RD | 0
Rare and Complex Conditions
Isovaleric Acidemia: Micah’s Metabolic Journey
18
Dec 2015
Isovaleric Acidemia: Micah’s Metabolic Journey
When he was just a few days old, Micah was diagnosed with Isovaleric Acidemia. His mom shares the story of those scary first days and how far he's come.
By: Lisa Hensley | 1
Food Allergies
 

13
Dec 2015
Allergy-Friendly Recipe: Berry Muffins
Our dietitians put together holiday recipes that exclude six of the most common food allergens.  (Recipe courtesy of Raquel Durban). Ingredients 2 cups gluten free flour 3 frozen bananas 1 cup frozen berries 3/4 cup sugar 1/2 cup applesauce 2 tablespoons of chia seeds mixed with 6 tablespoons of water 1 teaspoon baking soda Preparations
By: Carina Venter, PhD, RD | 0
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Creamy Pasta Sauce
Our dietitians put together holiday recipes that exclude the six most common food allergens. Recipe courtesy of Bethany Doerfler. Ingredients(serves 4) 1 can white kidney (cannelloni) beans 2-3 Tbsp olive oil 3-4 plum tomatoes (diced) ½ cup black or Kalamata olives 6-8 fresh basil leaves 1 small onion (diced) 1 clove garlic ½ cup gluten
By: Carina Venter, PhD, RD | 0
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Healthy Lazy Soup
Our dietitians pulled together holiday recipes that exclude six of the most common food allergens. This is a great one for when you don’t feel like cooking. Recipe courtesy of Bethany Doerfler. Ingredients (serves 4) 6-8 cups Gluten Free chicken broth 1 pound boneless skinless chicken breast 4-5 carrots 4-5 celery stalks 1 medium onion 2
By: Carina Venter, PhD, RD | 3
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Apple Pie
Our dietitians put together holiday recipes that exclude the six most common food allergens. Enjoy! Ingredients Pie Dough 5 cups of gluten free flour + extra for rolling the dough 1/2 teaspoon of salt 1/2 teaspoon of xantham gum (but can be omitted) 1/2 teaspoon of vanilla 1 teaspoon cinnamon 1/4 teaspoon of nutmeg (but
By: Carina Venter, PhD, RD | 0
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Honey Glazed Baby Carrots
Our dietitians put together holiday recipes that exclude the six most common food allergens. This recipe also works with Brussels sprouts. Enjoy!  Ingredients 16 oz bag of carrots 2 tablespoons honey 2 tablespoons coconut oil 1 tablespoon lemon juice Salt and pepper as required  Preparation Cover carrots with water and bring to boil until the
By: Carina Venter, PhD, RD | 0
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Extra Fluffy Mashed Potatoes
Our dietitians put together holiday recipes that exclude the six most common food allergens. Enjoy! Ingredients 8 lbs baking potatoes, peeled and cubed 1/2 cup Unflavored elemental formula or any milk substitute 1 cup unsalted chicken stock (or homemade) 2 tablespoons oil 1 1/4 teaspoons salt For the topping ½ stick (4 tablespoons) dairy free spread
By: Carina Venter, PhD, RD | 0
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Meat Balls
Our dietitians put together holiday recipes that exclude the six most common food allergens. This one is courtesy of Bethany Doerfler.  Ingredients (Serves 4) 1 lb fresh ground beef, chicken or pork ¼ cup Heinz Ketchup 2-3 Tbsp olive oil Potato chips (10-12) ½ cup Rice Chex cereal Salt and Pepper to taste 1 tsp dried
By: Carina Venter, PhD, RD | 0
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Pan-Fried Chicken with Meat Suace
Recipe: allergy friendly pan-friend chicken with meat sauce.
By: Carina Venter, PhD, RD | 0
Rare and Complex Conditions
06
Dec 2015
Don’t Let Sickle Cell Disease Win
Having sickle cell disease does not mean that you can’t live a normal, fulfilling life.
By: Raymond Bullucks | 2
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