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Rare and Complex Conditions

Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Healthy Lazy Soup
Our dietitians pulled together holiday recipes that exclude six of the most common food allergens. This is a great one for when you don’t feel like cooking. Recipe courtesy of Bethany Doerfler. Ingredients (serves 4) 6-8 cups Gluten Free chicken broth 1 pound boneless skinless chicken breast 4-5 carrots 4-5 celery stalks 1 medium onion 2
By: Carina Venter, PhD, RD | 3
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Apple Pie
Our dietitians put together holiday recipes that exclude the six most common food allergens. Enjoy! Ingredients Pie Dough 5 cups of gluten free flour + extra for rolling the dough 1/2 teaspoon of salt 1/2 teaspoon of xantham gum (but can be omitted) 1/2 teaspoon of vanilla 1 teaspoon cinnamon 1/4 teaspoon of nutmeg (but
By: Carina Venter, PhD, RD | 0
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Honey Glazed Baby Carrots
Our dietitians put together holiday recipes that exclude the six most common food allergens. This recipe also works with Brussels sprouts. Enjoy!  Ingredients 16 oz bag of carrots 2 tablespoons honey 2 tablespoons coconut oil 1 tablespoon lemon juice Salt and pepper as required  Preparation Cover carrots with water and bring to boil until the
By: Carina Venter, PhD, RD | 0
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Extra Fluffy Mashed Potatoes
Our dietitians put together holiday recipes that exclude the six most common food allergens. Enjoy! Ingredients 8 lbs baking potatoes, peeled and cubed 1/2 cup Unflavored elemental formula or any milk substitute 1 cup unsalted chicken stock (or homemade) 2 tablespoons oil 1 1/4 teaspoons salt For the topping ½ stick (4 tablespoons) dairy free spread
By: Carina Venter, PhD, RD | 0
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Meat Balls
Our dietitians put together holiday recipes that exclude the six most common food allergens. This one is courtesy of Bethany Doerfler.  Ingredients (Serves 4) 1 lb fresh ground beef, chicken or pork ¼ cup Heinz Ketchup 2-3 Tbsp olive oil Potato chips (10-12) ½ cup Rice Chex cereal Salt and Pepper to taste 1 tsp dried
By: Carina Venter, PhD, RD | 0
Food Allergies
 

12
Dec 2015
Allergy-Friendly Recipe: Pan-Fried Chicken with Meat Suace
Recipe: allergy friendly pan-friend chicken with meat sauce.
By: Carina Venter, PhD, RD | 0
Rare and Complex Conditions
06
Dec 2015
Don’t Let Sickle Cell Disease Win
Having sickle cell disease does not mean that you can’t live a normal, fulfilling life.
By: Raymond Bullucks | 2
Food Allergies
Cow’s Milk Elimination Diet – What to Eat Instead
06
Nov 2015
Cow’s Milk Elimination Diet – What to Eat Instead
Learn how to replace the nutrients in cow's milk with non-milk foods for kids who have a milk-free diet.
By: Carina Venter, PhD, RD | 0
Food Allergies
05
Nov 2015
Cow’s Milk Elimination Diet – Where to Start
The information parents need to start a milk elimination diet for their child or family who have milk allergy or intolerance.
By: Carina Venter, PhD, RD | 4
Rare and Complex Conditions
Chiari Malformation: Before and After Decompression Surgery
28
Oct 2015
Chiari Malformation: Before and After Decompression Surgery
Brothers Jacob and Dylan were both diagnosed with Chiari Malformation as infants. Read about their journey before and after decompression surgery.
By: Leeann Fitzpatrick | 8
Rare and Complex Conditions
Living-Related Donor Transplant: How It Changed Me
22
Oct 2015
Living-Related Donor Transplant: How It Changed Me
Hillary Weidner was her daughter's living-related donor transplant match, a procedure needed to treat biliary atresia.
By: Hillary Weidner | 0
Rare and Complex Conditions
4 Questions to Ask When Your Child Has Recurrent Croup
02
Oct 2015
4 Questions to Ask When Your Child Has Recurrent Croup
Rule out more serious causes of your child's recurrent croup. Find out when you should see an ear, nose and throat doctor.
By: Amy Myer, MSN, CNP | 5
Heart Conditions
Adjusting to Life After A Heart Transplant
30
Sep 2015
Adjusting to Life After A Heart Transplant
Why so many follow up tests, clinic visits, and proximity limitations are necessary for preventing rejection and complications after heart transplant.
By: Shelly Stark, MSN, APRN, CNP | 1
Rare and Complex Conditions
10 Tips for Parents of Kids with Chiari Malformation
23
Sep 2015
10 Tips for Parents of Kids with Chiari Malformation
Matthew had decompression surgery for Chiari malformation at age 4. Here, his mom offers tips on how to manage this challenging condition.
By: Merideth Rought | 21
Rare and Complex Conditions
They’re at it Again: 700 Miles to Hope for HLH
15
Sep 2015
They’re at it Again: 700 Miles to Hope for HLH
Justin Akin and 20 other cyclists set off from Natchez, MS on Saturday riding 700 miles over 7 days to raise money and awareness for HLH.
By: Cincinnati Children’s News Team | 0
Rare and Complex Conditions
HLH: What Five Years and 700 Miles Means to Me
11
Sep 2015
HLH: What Five Years and 700 Miles Means to Me
Sam Chamberlin talks about riding in the 700 Miles to Hope bike ride in honor of his daughter Maya, who is a five-year survivor of HLH.
By: Sam Chamberlin | 4
Rare and Complex Conditions
Maren and Liam – The Gift of Life: Organ Transplant Story Part III
03
Sep 2015
Maren and Liam – The Gift of Life: Organ Transplant Story Part III
Maren and Liam are both growing and thriving thanks to organ transplant and their organ donor. Their families are forever connected.
By: Cincinnati Children's Social Media Team | 0
Rare and Complex Conditions
Liam and Maren’s Stories Connect: Organ Transplant Story Part II
02
Sep 2015
Liam and Maren’s Stories Connect: Organ Transplant Story Part II
Two families discover that their children both had an organ transplant on the same day, at the same hospital and with the same organ donor.
By: Cincinnati Children's Social Media Team | 0
Rare and Complex Conditions
Liam’s Heart and Maren’s Liver: Organ Transplant Story – Part I
01
Sep 2015
Liam’s Heart and Maren’s Liver: Organ Transplant Story – Part I
Liam Sprague and Maren Foster both needed an organ transplant - a heart for Liam and a liver for Maren. Their parents share their stories. Part 1 of 3.
By: Cincinnati Children's Social Media Team | 3
Rare and Complex Conditions
10 Things I’d Like Others to Know About Complex Regional Pain Syndrome
28
Aug 2015
10 Things I’d Like Others to Know About Complex Regional Pain Syndrome
Because complex regional pain syndrome is an invisible illness, here are 10 things I'd like others to know about it.
By: Marissa Boyle | 9
Heart Conditions
Top Questions About Genetic Testing for Cardiomyopathy
27
Aug 2015
Top Questions About Genetic Testing for Cardiomyopathy
Find answers to the most common questions about cardiomyopathy and genetic testing.
By: Thomas Ryan, MD, PhD | 16
Heart Conditions
Sharing Asia’s Heart Transplant Story Is Like Throwing A Pebble In The Water
20
Aug 2015
Sharing Asia’s Heart Transplant Story Is Like Throwing A Pebble In The Water
Asia hopes sharing her heart transplant story will help encourage others to consider organ donation. She had a transplant as a baby and is now thriving.
By: Dawn Werner | 2
Heart Conditions
One Year Post Open-Heart Surgery, Alexander Doing Well
14
Aug 2015
One Year Post Open-Heart Surgery, Alexander Doing Well
The Marshall's video, "Waiting for Alexander" featured their son's congenital heart disease diagnosis. A year later, he is indistinguishable from his peers.
By: Rob Marshall | 0
Cancer and Blood Diseases
Cancer-Fighting Cyclotron Arrives at Cincinnati Children’s Liberty Campus
10
Aug 2015
Cancer-Fighting Cyclotron Arrives at Cincinnati Children’s Liberty Campus
The last week in July marked a milestone in the construction of the Cincinnati Children’s Hospital Medical Center/UC Health Proton Therapy Center at our Liberty Campus – the arrival and installation of the cyclotron – a type of particle accelerator and the heart of the cancer-fighting proton therapy technology. And while the giant piece of
By: Cincinnati Children's Social Media Team | 0
Heart Conditions
The Day Doctors Removed My Son’s PICC Line
22
Jul 2015
The Day Doctors Removed My Son’s PICC Line
My son, James Dickson, was born with tetralogy of Fallot, a congenital heart condition comprised of four heart defects which cause oxygen-poor blood to flow from the heart to the rest of the body. He was only eight months old when he had his first heart surgery. He was almost ten when he had his second.
By: Jennifer Dickson | 5

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